探索中国广东省珠海市自闭症谱系障碍(ASD)儿童母亲的护理经验和挑战

Weilin Lai
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引用次数: 0

摘要

本研究旨在探讨中国广东省珠海市患有自闭症儿童的母亲的护理经验和挑战。为实现这一目标,研究采用了定性设计,并通过半结构化访谈来收集有关有 ASD 儿童的母亲的经验和挑战的丰富定性数据。研究对象包括中国广东省珠海市患有自闭症儿童的母亲,研究采用目的性抽样法选出了 10 位合适的母亲样本。参与者是从广东省珠海市的一家 ASD 儿童康复中心招募的,而主题分析法则用于分析从 ASD 儿童母亲样本中收集到的定性数据。总体而言,研究结果表明,该地区自闭症儿童母亲所经历的主要社会挑战包括耻辱感、社会支持不足以及疲劳、压力和焦虑。除了揭示自闭症儿童母亲所面临的挑战外,研究结果还揭示了自闭症儿童母亲在应对主要护理挑战和改善自身健康与福祉时可采用的主要应对策略。因此,这项研究对理论和实践都具有重要意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Exploring the Caregiving Experiences and Challenges of Mothers of Children with Autism Spectrum Disorder (ASD) in Zhuhai City, Guangdong Province, China
The aim of this research was to explore the caregiving experiences and challenges of mothers of children with ASD in Zhuhai City, Guangdong Province, China. To achieve this aim, the research employed a qualitative design and used semi-structured interviews to facilitate the collection of rich, qualitative data regarding the experiences and challenges of mothers of children with ASD. The study population comprised mothers of children with ASD in Zhuhai City, Guangdong Province, China, and purposive sampling was used to select a suitable sample of 10 mothers that was used in the study. The participants were recruited from a rehabilitation center for children with ASD in Zhuhai, Guangdong Province, while thematic analysis was used to analyze the qualitative data collected from the sample of mothers of children with ASD. Overall, the results reveal that the main social challenges experienced by mothers of autistic children in the region include stigma, inadequate social support, as well as fatigue, stress & anxiety. In addition to revealing the challenges facing mothers of children with ASD, the results also revealed the main coping strategies that can be used by mothers of autistic children in addressing the major caregiving challenges and improving their health and well-being. Thus, this research has valuable implications for both theory and practice.
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