自闭症患者语言感知困难的多样性。

IF 2.5 Q1 EDUCATION, SPECIAL
Autism and Developmental Language Impairments Pub Date : 2024-01-27 eCollection Date: 2024-01-01 DOI:10.1177/23969415241227074
George J Bendo, Alexandra Sturrock, Graham Hanks, Christopher J Plack, Emma Gowen, Hannah Guest
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引用次数: 0

摘要

背景与目的:沟通和感官差异是自闭症的核心特征,但人们对自闭症患者的言语感知能力和困难仍然知之甚少。实验室研究结果参差不齐,没有定论,部分原因是自闭症患者在确定研究假设和方法时缺乏参与。有关自闭症患者言语感知经验的深入定性研究鲜有发表,但此类研究可为更好的实验室研究、加深对自闭症患者经验的理解以及制定干预措施奠定基础。现有的定性研究描述了自闭症患者普遍存在的听力差异,并对其产生了重大影响,但这些结果依赖于小样本口头访谈收集的数据。本研究针对这些局限性,采用混合方法探索自闭症患者的倾听体验:我们收集了 79 名年龄在 18-55 岁之间、未确诊听力损失的自闭症患者的调查数据。问卷包括 20 个有关倾听能力和困难的封闭式问题,以及 3 个有关倾听体验的自由文本问题。自由文本问题采用演绎式内容分析方法,分析框架由以前有关倾听经历的访谈数据主题组成(包括听觉差异、诱因、影响和应对策略)。对自由文本数据中不属于分析框架的概念进行了归纳分析:在封闭集数据中,参与者表示在大多数特定环境中都有听力困难,但复杂的背景声音,尤其是背景声音造成的困难最大。与其他同龄人相比,那些报告听力困难的人所遇到的困难要大得多。参与者表示,听力困难对他们的社交生活造成了多重影响。自由文本数据中的概念有力地支持了之前关于倾听差异和影响倾听能力因素的访谈数据,尤其是倾听困难类型的多样性。与封闭式数据一致,背景声音的复杂性和同时出现的声音尤其令人困扰。自由文本数据中的一些概念很新颖,尤其是在远程、广播和录制音频方面的困难,这促使我们创建了新的主题:两种形式的数据都表明,听力差异--主要是听力困难--影响着大多数患有自闭症的成年人。听力障碍的类型多种多样,这可能表明其潜在机制各不相同,背景噪声的复杂性一直被认为是一个重要因素。据说倾听困难会产生巨大而多样的影响。成年自闭症患者热衷于分享应对策略,这些策略多种多样,通常都是自己设计的:根据定量和定性结果,我们提出了改进未来研究和支持自闭症群体的建议。这些数据揭示了倾听困难的类型,可以指导我们更好地对其潜在机制进行定量研究。此类研究应考虑到倾听困难的潜在异质性。我们还提出了优化自我报告数据收集的建议。此外,我们的研究结果还可用于提高社会对自闭症患者听力差异的认识,并为自闭症患者制定有益的干预措施。此外,鉴于自闭症群体愿意分享应对策略,系统整理这些策略可为自助和临床指导奠定基础。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The diversity of speech-perception difficulties among autistic individuals.

Background & aims: Communicative and sensory differences are core autistic traits, yet speech-perception abilities and difficulties among autistic individuals remain poorly understood. Laboratory studies have produced mixed and inconclusive results, in part because of the lack of input from autistic individuals in defining the hypotheses and shaping the methods used in this field of research. Little in-depth qualitative research on autistic experiences of speech perception has been published, yet such research could form the basis for better laboratory research, for improved understanding of autistic experiences, and for the development of interventions. Existing qualitative research describes widespread autistic listening differences with significant impacts, but these results rely on data gathered via oral interviews in a small sample. The present study addresses these limitations and employs a mixed-methods approach to explore autistic listening experiences.

Methods: We gathered survey data from 79 autistic individuals aged 18-55 without diagnosed hearing loss. The questionnaire included 20 closed-set questions on listening abilities and difficulties and three free-text questions on listening experiences. The free-text questions underwent deductive content analysis using a framework composed of themes from previous interview data on listening experiences (including auditory differences, contributing factors, impacts, and coping strategies). Concepts in the free-text data that were not part of the analysis framework were analyzed inductively.

Results: In the closed-set data, participants reported listening difficulties in most specified environments, but complex background sounds and particularly background voices caused the most difficulty. Those who reported listening difficulties expressed having substantially greater difficulties than other people the same age. Participants indicated multiple impacts from listening difficulties, most prominently in their social lives. Concepts in the free-text data strongly supported previous interview data on listening differences and factors that affect listening ability, especially the diversity of types of listening difficulties. Consistent with the closed-set data, background-sound complexity and concurrent voices were especially troubling. Some concepts in the free-text data were novel, particularly difficulties with remote, broadcast, and recorded audio, prompting the creation of new themes.

Conclusions: Both forms of data indicate widespread listening differences-predominantly listening difficulties-affecting most autistic adults. Diverse types of listening difficulty are evident, potentially indicating heterogeneous underlying mechanisms, and complexity of background noise is consistently identified as an important factor. Listening difficulties are said to have substantial and varied impacts. Autistic adults are keen to share coping strategies, which are varied and usually self-devised.

Implications: Based on both the quantitative and qualitative results, we provide recommendations to improve future research and support the autistic community. The data-revealing types of listening difficulties can guide better quantitative research into underlying mechanisms. Such research should take into account potential heterogeneity in listening difficulties. Suggestions for optimized collection of self-report data are also offered. Additionally, our results could be used to improve societal understanding of autistic listening differences and to create beneficial interventions for and with autistic individuals. Moreover, given the willingness of the autistic community to share coping strategies, systematic collation of these strategies could form the basis for self-help and clinical guidance.

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来源期刊
Autism and Developmental Language Impairments
Autism and Developmental Language Impairments Psychology-Clinical Psychology
CiteScore
3.20
自引率
0.00%
发文量
20
审稿时长
12 weeks
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