Kim Engler, Francesco Avallone, Abdul Cadri, Bertrand Lebouché
{"title":"成人 HIV 护理中的患者报告结果测量：对目标结果和所用工具的快速范围审查。","authors":"Kim Engler, Francesco Avallone, Abdul Cadri, Bertrand Lebouché","doi":"10.1111/hiv.13599","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Objective</h3>\n \n <p>There is international interest in the integration of patient-reported outcome measures (PROMs) into routine HIV care, but little work has synthesized the content of published initiatives. We conducted a rapid scoping review primarily to identify their selected patient-reported outcomes and respective instruments.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Four databases were searched on 4 May 2022 (Medline, Embase, CINAHL and PsychINFO) for relevant English language documents published from 2005 onwards. Dual review of at least 20% of records, full texts and data extraction was performed. Outcomes and instruments were classified with an adapted 14-domain taxonomy. Instruments with evidence of validation were described.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Of 13 062 records generated for review, we retained a final sample of 94 documents, referring to 60 distinct initiatives led mostly in the USA (<i>n</i> = 29; 48% of initiatives), Europe (<i>n</i> = 16; 27%) and Africa (<i>n</i> = 9; 15%). The measured patient-reported outcome domains were: mental health (<i>n</i> = 42; 70%), substance use (<i>n</i> = 23; 38%), self-management (<i>n</i> = 16; 27%), symptoms (<i>n</i> = 12; 20%), sexual/reproductive health (<i>n</i> = 12; 20%), physical health (<i>n</i> = 9; 15%), treatment (<i>n</i>= 8; 13%), cognition (<i>n</i> = 7; 12%), quality of life (<i>n</i> = 7; 12%), violence/abuse (<i>n</i> = 6; 10%), stigma (<i>n</i> = 6; 10%), socioeconomic issues (<i>n</i> = 5; 8%), social support (<i>n</i> = 3; 5%) and body/facial appearance (<i>n</i> = 1; 2%). Initiatives measured 2.6 outcome domains, on average (range = 1–11). In total, 62 distinct validated PROMs were identified, with 53 initiatives (88%) employing at least one (<i>M</i> = 2.2). Overwhelmingly, the most used instrument was any version of the Patient Health Questionnaire to measure symptoms of depression, employed by over a third (26; 43%) of initiatives.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Published PROM initiatives in HIV care have spanned 19 countries and disproportionately target mental health and substance use.</p>\n </section>\n </div>","PeriodicalId":13176,"journal":{"name":"HIV Medicine","volume":null,"pages":null},"PeriodicalIF":2.8000,"publicationDate":"2024-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hiv.13599","citationCount":"0","resultStr":"{\"title\":\"Patient-reported outcome measures in adult HIV care: A rapid scoping review of targeted outcomes and instruments used\",\"authors\":\"Kim Engler, Francesco Avallone, Abdul Cadri, Bertrand Lebouché\",\"doi\":\"10.1111/hiv.13599\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Objective</h3>\\n \\n <p>There is international interest in the integration of patient-reported outcome measures (PROMs) into routine HIV care, but little work has synthesized the content of published initiatives. We conducted a rapid scoping review primarily to identify their selected patient-reported outcomes and respective instruments.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>Four databases were searched on 4 May 2022 (Medline, Embase, CINAHL and PsychINFO) for relevant English language documents published from 2005 onwards. Dual review of at least 20% of records, full texts and data extraction was performed. Outcomes and instruments were classified with an adapted 14-domain taxonomy. Instruments with evidence of validation were described.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Of 13 062 records generated for review, we retained a final sample of 94 documents, referring to 60 distinct initiatives led mostly in the USA (<i>n</i> = 29; 48% of initiatives), Europe (<i>n</i> = 16; 27%) and Africa (<i>n</i> = 9; 15%). The measured patient-reported outcome domains were: mental health (<i>n</i> = 42; 70%), substance use (<i>n</i> = 23; 38%), self-management (<i>n</i> = 16; 27%), symptoms (<i>n</i> = 12; 20%), sexual/reproductive health (<i>n</i> = 12; 20%), physical health (<i>n</i> = 9; 15%), treatment (<i>n</i>= 8; 13%), cognition (<i>n</i> = 7; 12%), quality of life (<i>n</i> = 7; 12%), violence/abuse (<i>n</i> = 6; 10%), stigma (<i>n</i> = 6; 10%), socioeconomic issues (<i>n</i> = 5; 8%), social support (<i>n</i> = 3; 5%) and body/facial appearance (<i>n</i> = 1; 2%). Initiatives measured 2.6 outcome domains, on average (range = 1–11). In total, 62 distinct validated PROMs were identified, with 53 initiatives (88%) employing at least one (<i>M</i> = 2.2). 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Patient-reported outcome measures in adult HIV care: A rapid scoping review of targeted outcomes and instruments used
Objective
There is international interest in the integration of patient-reported outcome measures (PROMs) into routine HIV care, but little work has synthesized the content of published initiatives. We conducted a rapid scoping review primarily to identify their selected patient-reported outcomes and respective instruments.
Methods
Four databases were searched on 4 May 2022 (Medline, Embase, CINAHL and PsychINFO) for relevant English language documents published from 2005 onwards. Dual review of at least 20% of records, full texts and data extraction was performed. Outcomes and instruments were classified with an adapted 14-domain taxonomy. Instruments with evidence of validation were described.
Results
Of 13 062 records generated for review, we retained a final sample of 94 documents, referring to 60 distinct initiatives led mostly in the USA (n = 29; 48% of initiatives), Europe (n = 16; 27%) and Africa (n = 9; 15%). The measured patient-reported outcome domains were: mental health (n = 42; 70%), substance use (n = 23; 38%), self-management (n = 16; 27%), symptoms (n = 12; 20%), sexual/reproductive health (n = 12; 20%), physical health (n = 9; 15%), treatment (n= 8; 13%), cognition (n = 7; 12%), quality of life (n = 7; 12%), violence/abuse (n = 6; 10%), stigma (n = 6; 10%), socioeconomic issues (n = 5; 8%), social support (n = 3; 5%) and body/facial appearance (n = 1; 2%). Initiatives measured 2.6 outcome domains, on average (range = 1–11). In total, 62 distinct validated PROMs were identified, with 53 initiatives (88%) employing at least one (M = 2.2). Overwhelmingly, the most used instrument was any version of the Patient Health Questionnaire to measure symptoms of depression, employed by over a third (26; 43%) of initiatives.
Conclusion
Published PROM initiatives in HIV care have spanned 19 countries and disproportionately target mental health and substance use.
期刊介绍：
HIV Medicine aims to provide an alternative outlet for publication of international research papers in the field of HIV Medicine, embracing clinical, pharmocological, epidemiological, ethical, preclinical and in vitro studies. In addition, the journal will commission reviews and other feature articles. It will focus on evidence-based medicine as the mainstay of successful management of HIV and AIDS. The journal is specifically aimed at researchers and clinicians with responsibility for treating HIV seropositive patients.
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