家长参加合议会议,讨论暂停或撤消对新生儿的治疗:努力改善信息共享。

IF 1.3 4区 医学 Q3 PEDIATRICS
Philippe Boize , Yaëlle Garner , Enora Neaud , Suzanne Borrhomee
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引用次数: 0

摘要

目的:父母在子女临终关怀决策中的角色尚未明确界定。法国国家伦理咨询委员会(CCNE)的伦理反思鼓励父母参与其中,但法律仅限于规定父母有义务向医生提供信息。在合议会议(CM)结束时做出决定,目的是更好地告知患儿的转诊医生(RP),后者负责根据法国法律做出最终决定。本研究的目的是描述丧亲家庭应邀参加有关其子女的合议会议(如果他们愿意的话)后所获得的支持。此外,我们还希望了解丧亲家庭接受或拒绝参加会议后,他们对子女病史的看法以及他们的悲痛过程有何不同:我们对2016年11月至2021年5月期间举行的所有CM进行了回顾性研究,区分了向家长提出或未提出的建议以及他们接受或拒绝的决定:研究期间共进行了 49 次中西医结合治疗,涉及 46 名儿童。有 3 例未向家长提出建议;有 28 例家长选择出席。心理随访结果(15/28 位家长出席,10/16 位家长缺席)表明,家长的出席使他们在听取并理解了孩子死亡的原因后,能够对孩子的死亡进行反思。他们对小组的方法或做出的决定没有异议:结论:如果父母愿意,可以让他们参与医疗小组的工作。这似乎比仅仅向他们提供所需的信息更有益。必须开展研究,以确保潜在的长期益处。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents’ participation in collegial meetings to discuss withholding or withdrawing treatment for their newborn: Working to improve information-sharing

Aim

The role of parents in decision-making concerning their child's end-of-life care is not clearly defined. Their participation is encouraged by ethical reflection, in particular by the CCNE (French National Ethics Advisory Committee), but laws are limited to imposing a duty to provide information to doctors. Decisions are taken at the end of a collegial meeting (CM) intended to better inform the child's referring physician (RP) who is in charge of the final decision following the French law. The aim of this study was to describe the support provided to bereaved families after they had been invited to attend a CM concerning their child, if they so wished. Additional aims were to determine the differences resulting from their acceptance or their refusal to participate as regards their perception of their child's history and as regards their grieving process.

Material and method

We conducted a retrospective study of all CMs held between November 2016 and May 2021, drawing a distinction between proposals made or not made to parents and their decision to accept or refuse.

Results

In total, 49 CMs concerning 46 children were held during the study period. The proposal was not made to the parents in three cases; the parents chose to be present in 28 cases. The psychological follow-up (15/28 parents attending, 10/16 parents absent) illustrated that their presence enabled them to reflect on their child's death after having listened to and understood the reasons why it happened. They did not dispute the team's approach or decisions taken.

Conclusion

It is possible to include parents in CMs if they so wish. It would appear more beneficial than merely providing them with the information required. Studies must be carried out to ensure potential long-term benefit.

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来源期刊
Archives De Pediatrie
Archives De Pediatrie 医学-小儿科
CiteScore
2.80
自引率
5.60%
发文量
106
审稿时长
24.1 weeks
期刊介绍: Archives de Pédiatrie publishes in English original Research papers, Review articles, Short communications, Practice guidelines, Editorials and Letters in all fields relevant to pediatrics. Eight issues of Archives de Pédiatrie are released annually, as well as supplementary and special editions to complete these regular issues. All manuscripts submitted to the journal are subjected to peer review by international experts, and must: Be written in excellent English, clear and easy to understand, precise and concise; Bring new, interesting, valid information - and improve clinical care or guide future research; Be solely the work of the author(s) stated; Not have been previously published elsewhere and not be under consideration by another journal; Be in accordance with the journal''s Guide for Authors'' instructions: manuscripts that fail to comply with these rules may be returned to the authors without being reviewed. Under no circumstances does the journal guarantee publication before the editorial board makes its final decision. Archives de Pédiatrie is the official publication of the French Society of Pediatrics.
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