识别患有轻度神经认知障碍的以色列人和德国人、他们的亲属以及阿尔茨海默病患者的护理人员所使用的侮辱性语言。

IF 1.8 4区 医学 Q3 CLINICAL NEUROLOGY
Perla Werner, Natalie Ulitsa, Zümrüt Alpinar-Sencan, Daphna Shefet, Silke Schicktanz
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引用次数: 0

摘要

研究目的本研究旨在考察和比较以色列和德国的轻度神经认知障碍(MND)患者、其家庭成员以及阿尔茨海默病患者的家庭照顾者所使用的与痴呆症相关的话语和语言:二次定性分析包括焦点小组和半结构化访谈。主题分析用于揭示有关痴呆症和痴呆症患者的主要论述和污名化语言:以色列和德国的利益相关者:44 名以色列参与者和 44 名德国参与者:28 名 MND 患者、20 名 MND 患者的家庭成员和 40 名阿尔茨海默病患者的家庭照顾者:结果:确定了两种主要论述:悲剧论述和生物医学论述。悲剧论述包括几个次主题:"痴呆症是最糟糕的情况"、"对痴呆症束手无策 "和 "痴呆症患者不是人"。生物医学论述则强调痴呆症的病理方面。以色列和德国的参与者之间有相似之处,也有不同之处:这项研究表明,尽管存在文化和语言差异,但在以色列和德国,与痴呆症有密切接触的人中使用污名化话语和污名化语言的情况很普遍。应加大努力,发展以人为本、对痴呆症友好的语言。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Identifying Stigmatizing Language Used by Israelis and Germans With a Mild Neurocognitive Disorder, Their Relatives, and Caregivers of People With Alzheimer's Disease.

Objectives: The purpose of the study was to examine and compare the dementia-related discourse and language used by people with mild neurocognitive disorder (MND), their family members, and family caregivers of people with Alzheimer's disease in Israel and Germany.

Design: This secondary qualitative analysis included focus groups and semistructured interviews. Thematic analysis was used to reveal the main discourses and stigmatic language used regarding dementia and people with dementia.

Setting: Israeli and German stakeholders.

Participants: Forty-four Israeli and 44 German participants: 28 people with MND, 20 family members of people with MND, and 40 family caregivers of people with Alzheimer's disease.

Results: Two main discourses were identified: the tragedy and the biomedical discourse. The tragedy discourse included several subthemes: "Dementia as the worst-case scenario," "Nothing can be done about dementia," and "People with dementia are not human." The biomedical discourse stressed pathologic aspects of the condition. Similarities and differences were found between Israeli and German participants.

Conclusions: The study indicates that, despite culture and language differences, the use of stigmatic discourse and stigmatizing language is common among people with close exposure to dementia in Israel and Germany. Efforts should be increased to develop a person-centered and dementia-friendly language.

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来源期刊
CiteScore
3.10
自引率
4.80%
发文量
88
期刊介绍: ​Alzheimer Disease & Associated Disorders is a peer-reviewed, multidisciplinary journal directed to an audience of clinicians and researchers, with primary emphasis on Alzheimer disease and associated disorders. The journal publishes original articles emphasizing research in humans including epidemiologic studies, clinical trials and experimental studies, studies of diagnosis and biomarkers, as well as research on the health of persons with dementia and their caregivers. The scientific portion of the journal is augmented by reviews of the current literature, concepts, conjectures, and hypotheses in dementia, brief reports, and letters to the editor.
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