为患有慢性病的儿童量身定制的家庭心理教育干预措施:家庭的经验

Q2 Social Sciences
M. Capurso, Gaetano Catalano, Anna Calvaruso, Annalinda Monticelli, C. Taormina, Samanta Battiato, Francesca Paola Guadagna, Tania Piccione, Paolo D’Angelo, Delia Russo, A. Trizzino, Veronica Raspa
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引用次数: 0

摘要

慢性病患儿的生活质量取决于多种因素,包括疾病的严重程度、医疗方法、社会心理和教育支持、资源可用性以及社区参与。当儿童在家中接受护理时,这些生物心理社会因素就变得非常重要。本文介绍并评估了一项为 40 个西西里家庭提供的高度个性化的支持项目,该项目包括在家庭和社区提供教育、社会和心理服务。在社会心理评估工具(PAT)和功能心理学框架的指导下,该项目采用了以家庭为中心的医疗保健方法,并以所有利益相关者之间的持续对话为基础。通过对巴勒莫地区八个家庭的定性访谈对该项目进行了评估,并采用协商一致的定性研究方法对访谈内容进行了分析。结果显示,家庭对该项目表示赞赏,并认为专业人员倾听他们的需求、提供与医疗团队的联系以及量身定制家庭内外的活动非常重要。专业人员倾听并根据不同情况和需求调整活动的能力对项目的成功至关重要。我们的结论是,由教育工作者作为医疗团队的联络人,为家庭量身定制干预措施,是一种广为接受的策略,应进一步发展和研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Tailored Psychoeducational Home Interventions for Children with a Chronic Illness: Families’ Experiences
The quality of life for a child with a chronic illness depends on various factors, including the illness’s severity, medical treatments, psychosocial and educational support, resource availability, and community involvement. These biopsychosocial factors become significant when the child receives care at home. This article presents and evaluates a highly personalized support project offered to 40 Sicilian families, consisting of educational, social, and psychological services delivered at the families homes and in their communities. Guided by the Psychosocial Assessment Tool (PAT) and the Functional Psychology framework, the project employed a family-focused approach to healthcare and was based on a continuous dialogue between all stakeholders. The project was evaluated through a qualitative interview with eight families in the Palermo area, which was analyzed using consensual qualitative research. Results revealed families’ appreciation of the project and the importance of a professional who listened to their needs, provided a connection with the medical team, and tailored activities inside and outside the home. The ability of professionals to listen and adapt activities to different contexts and needs was crucial for the project’s success. We conclude that creating tailored family-level interventions with an educator acting as a liaison with the medical team is a widely acceptable strategy that should be further developed and investigated.
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来源期刊
Continuity in Education
Continuity in Education Social Sciences-Education
CiteScore
2.80
自引率
0.00%
发文量
4
审稿时长
22 weeks
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