Asmaa Housni BSc , Rosemarie Cianci BSc , Rayzel Shulman PhD , Meranda Nakhla PhD , Joseph A. Cafazzo PhD , Sarah D. Corathers PhD , Joyce P. Yi-Frazier PhD , Jessica C. Kichler PhD , Anne-Sophie Brazeau RD, PhD
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Our aim in this study was to collect educational resources relevant to Canadian youth and assess their quality and comprehensiveness in addressing the knowledge necessary for youth to prepare for interdependent management of their diabetes.</span></p></div><div><h3>Methods</h3><p>We conducted an environmental scan, a systematic assessment and analysis, of online education resources in English and French relevant to Canadian youth living with type 1 diabetes. Resources were screened using an open education resource evaluation grid and relevant resources were mapped to the Readiness for Emerging Adults with Diabetes Diagnosed in Youth, a validated diabetes transition readiness assessment tool.</p></div><div><h3>Results</h3><p>From 44 different sources, 1,245 resources were identified and, of these, 760 were retained for analysis. The majority were webpages (50.1%) and downloadable PDFs (42.4%), and 12.1% were interactive. Most resources covered Diabetes Knowledge (46.0%), Health Behaviour (23.8%), Insulin and Insulin Pump Management (11.8% and 8.6%, respectively), and Health-care System Navigation (9.7%). Topic areas with the fewest resources were disability accommodations (n=5), sexual health/function (n=4), and locating trustworthy diabetes resources (n=3).</p></div><div><h3>Conclusions</h3><p>There are many resources available for those living with type 1 diabetes preparing to transition to adult care, with the majority pertaining to diabetes knowledge and the least for navigation of the health system. Few resources were available on the topics of substance use, sexual health, and reproductive health. An interactive presentation of these resources, as well as a central repository to house these resources, would improve access for youth and diabetes care providers during transition preparation.</p></div>","PeriodicalId":9565,"journal":{"name":"Canadian Journal of Diabetes","volume":null,"pages":null},"PeriodicalIF":2.3000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Online Educational Resources for Youth Living With Type 1 Diabetes Transitioning to Adult Care: An Environmental Scan of Canadian Content\",\"authors\":\"Asmaa Housni BSc , Rosemarie Cianci BSc , Rayzel Shulman PhD , Meranda Nakhla PhD , Joseph A. Cafazzo PhD , Sarah D. Corathers PhD , Joyce P. Yi-Frazier PhD , Jessica C. 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引用次数: 0
摘要
背景为患有 1 型糖尿病的青少年和年轻成人提供了许多教育资源；但是，这些资源是否涉及到与向成人护理过渡相关的广泛主题尚不得而知。我们的目标是收集与加拿大青少年相关的教育资源，并评估这些资源的质量和全面性，以了解青少年为糖尿病的相互依存管理做好准备所需的知识。方法我们对与加拿大 1 型糖尿病青少年患者相关的英语和法语在线教育资源进行了环境扫描、系统评估和分析。我们使用开放式教育资源评估网格对资源进行了筛选，并将相关资源映射到 "青年期诊断出糖尿病的新成人准备情况"（Readiness for Emerging Adults with Diabetes Diagnosed in Youth，READDY）这一经过验证的糖尿病过渡准备情况评估工具。其中大部分是网页（50.1%）和可下载的 PDF 文件（42.4%），12.1% 是互动式的。大多数资源涉及糖尿病知识（46.0%）、健康行为（23.8%）、胰岛素和胰岛素泵管理（分别为 11.8% 和 8.6%）以及医疗系统导航（9.7%）。结论对于准备过渡到成人护理的 1 型糖尿病患者来说，有很多可用的资源，其中大部分与糖尿病知识有关，最少与健康系统导航有关。有关药物使用、性健康和生殖健康的资源很少。对这些资源进行交互式展示，并建立一个中央资源库来存放这些资源，将有助于青少年和糖尿病医疗服务提供者在过渡准备期间更好地获取这些资源。
Online Educational Resources for Youth Living With Type 1 Diabetes Transitioning to Adult Care: An Environmental Scan of Canadian Content
Objectives
There are many educational resources for adolescents and young adults living with type 1 diabetes; however, it is unknown whether they address the breadth of topics related to transition to adult care. Our aim in this study was to collect educational resources relevant to Canadian youth and assess their quality and comprehensiveness in addressing the knowledge necessary for youth to prepare for interdependent management of their diabetes.
Methods
We conducted an environmental scan, a systematic assessment and analysis, of online education resources in English and French relevant to Canadian youth living with type 1 diabetes. Resources were screened using an open education resource evaluation grid and relevant resources were mapped to the Readiness for Emerging Adults with Diabetes Diagnosed in Youth, a validated diabetes transition readiness assessment tool.
Results
From 44 different sources, 1,245 resources were identified and, of these, 760 were retained for analysis. The majority were webpages (50.1%) and downloadable PDFs (42.4%), and 12.1% were interactive. Most resources covered Diabetes Knowledge (46.0%), Health Behaviour (23.8%), Insulin and Insulin Pump Management (11.8% and 8.6%, respectively), and Health-care System Navigation (9.7%). Topic areas with the fewest resources were disability accommodations (n=5), sexual health/function (n=4), and locating trustworthy diabetes resources (n=3).
Conclusions
There are many resources available for those living with type 1 diabetes preparing to transition to adult care, with the majority pertaining to diabetes knowledge and the least for navigation of the health system. Few resources were available on the topics of substance use, sexual health, and reproductive health. An interactive presentation of these resources, as well as a central repository to house these resources, would improve access for youth and diabetes care providers during transition preparation.
期刊介绍：
The Canadian Journal of Diabetes is Canada''s only diabetes-oriented, peer-reviewed, interdisciplinary journal for diabetes health-care professionals.
Published bimonthly, the Canadian Journal of Diabetes contains original articles; reviews; case reports; shorter articles such as Perspectives in Practice, Practical Diabetes and Innovations in Diabetes Care; Diabetes Dilemmas and Letters to the Editor.
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