后天性脑损伤年轻患者在门诊康复环境中的疲劳问题:为期两年的跟踪研究。

IF 1.7 3区 心理学 Q4 NEUROSCIENCES
Neuropsychological Rehabilitation Pub Date : 2024-10-01 Epub Date: 2024-01-04 DOI:10.1080/09602011.2023.2298628
Florian Allonsius, Frederike van Markus-Doornbosch, Arend de Kloet, Daniël Opschoor, Thea Vliet Vlieland, Menno van der Holst
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引用次数: 0

摘要

后天性脑损伤(ABI)可能会导致年轻患者出现疲劳和活动受限。然而,有关这些问题随时间变化的过程的知识却很缺乏。本研究旨在通过一项为期两年的观察性随访研究,描述转诊至门诊康复治疗的获得性脑损伤(ABI)患者(5-24 岁)及其父母在一段时间内的疲劳和参与过程及其关系。患者/家长填写了 PedsQL™多维疲劳量表(PedsQL™MFS,总分/3 个领域)和儿童/青少年参与量表(CASP,总分/4 个领域)。分数范围为 0-100:分数越低,疲劳/参与问题越多。采用线性混合模型和重复测量相关性来确定随时间变化的过程(变化分数/95%CI)以及疲劳/参与之间的相关性。基线时有 223 名患者/246 名家长参与,其中有 94/104 人在 T1、T2 或两个阶段都参与。年龄中位数为 15 岁(IQR:12-17),74% 的患者有脑外伤。患者/家长报告的 PedsQL™MFS 总分(基线)平均值(标度)为分别为 50.3(17.3)和 53.8(19.1)。CASP 总分分别为 78.0(16.4)和 87.1(13.6)。随着时间的推移,患者报告的评分有了明显改善(疲劳:+ 8.8(2.9)):+ 8.8 (2.9;14.7), p p p
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Fatigue in young patients with acquired brain injury in the outpatient rehabilitation setting: A 2-year follow-up study.

Acquired brain injury (ABI) may cause fatigue and participation restrictions in young patients. However, knowledge regarding the course of these problems over time is lacking. This study aims to describe the course of fatigue and participation and their relationship over time in an observational two-year follow-up study among patients(5-24 years) with ABI referred for outpatient rehabilitation and their parents. Patients/parents completed the PedsQL™Multidimensional-Fatigue-Scale(PedsQL™MFS, totalscore/3-domains) and the Child/Adolescent-Scale of Participation(CASP, totalscore/4-domains). Scores ranged from 0-100: lower scores = more fatigue/participation problems. Linear mixed models and repeated measures correlations were used to determine the course over time (change-scores/95%CI) and correlations between fatigue/participation. At baseline, 223 patients/246 parents participated with 94/104 at either T1, T2 or both. Median age was 15 years (IQR:12-17), 74% had a traumatic brain injury. Mean(SD) patient/parent-reported PedsQL™MFS totalscores(baseline) were: 50.3(17.3) and 53.8(19.1), respectively. CASP totalscores were 78.0(16.4) and 87.1(13.6). Over time, patient-reported scores improved significantly (fatigue: + 8.8 (2.9;14.7), p < 0.05)/participation: + 10.5 (6.3;14.7), p < 0.05)). Similar results were found regarding parent-reported fatigue: + 8.7 (3.4;13.9), p < 0.05 but not regarding participation. Two years later, fatigue was still considerable(patients:59.1/parents:62.5). Moderate/fair correlations between fatigue/participation over time were found. Fatigue and participation in young patients with ABI improved two years after referral to rehabilitation. However, fatigue remained a considerable problem.

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来源期刊
Neuropsychological Rehabilitation
Neuropsychological Rehabilitation 医学-神经科学
CiteScore
6.30
自引率
7.40%
发文量
78
审稿时长
>12 weeks
期刊介绍: Neuropsychological Rehabilitation publishes human experimental and clinical research related to rehabilitation, recovery of function, and brain plasticity. The journal is aimed at clinicians who wish to inform their practice in the light of the latest scientific research; at researchers in neurorehabilitation; and finally at researchers in cognitive neuroscience and related fields interested in the mechanisms of recovery and rehabilitation. Papers on neuropsychological assessment will be considered, and special topic reviews (2500-5000 words) addressing specific key questions in rehabilitation, recovery and brain plasticity will also be welcomed. The latter will enter a fast-track refereeing process.
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