非专业知识的常规化:开放源码人工胰腺的发明与稳定的异时空叙述。

IF 2.9 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE
Social Studies of Science Pub Date : 2024-08-01 Epub Date: 2023-12-28 DOI:10.1177/03063127231214237
Clay Davis
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引用次数: 0

摘要

具身健康运动(EHMs)通过调解生物医学知识的生产、流通和修订来推进其议程。为此,他们的成员通过将自身的疾病体验与自学的技术知识相结合,成为非专业专家。然而,目前还不清楚非专业专家如何在 EHMs 中实现常规化,因此也不清楚在与认证专家的长期合作中,非专业专家能在多大程度上实现持久性。我跟踪了 OpenAPS 社区--一群设计了开源 "人造胰腺 "的一型糖尿病患者--从他们在短暂的 #WeAreNotWaiting(我们不等待)运动中诞生,到他们与内分泌专家的研究合作,再到与 FDA 的缓和关系。我认为,OpenAPS 的用户贡献者通过三个步骤将他们的专业知识正规化:首先,他们将 OpenAPS 算法分解成多个模块,这样潜在用户就必须成为专家才能将其组装起来。其次,他们通过培训仪式促进新用户贡献者的社会化,从而降低了进入门槛。第三,他们介入了内分泌科医生与患者之间的紧张关系。这些策略--限制成员资格、再现专业知识、重新调整利益--赢得了有信誉的专家的尊重,他们从OpenAPS社区的形象中看到了自己。虽然并非所有的内分泌医疗机构都遵循这一轨迹,但这一案例表明,非专业专家可以在不依赖商业化或赞助的情况下成熟起来,并形成新的机构形式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The routinization of lay expertise: A diachronic account of the invention and stabilization of an open-source artificial pancreas.

Embodied health movements (EHMs) advance their agendas by mediating the production, circulation, and revision of biomedical knowledge. To do this, their constituents become lay experts by blending their embodied experience of illness with self-taught technical knowledge. However, it is unclear how lay expertise is routinized within EHMs, and consequently, to what extent it can be made durable in long-term partnerships with credentialed experts. I follow the OpenAPS community-a group of people with type one diabetes who engineered an open-source 'artificial pancreas'-from their inception in the transient #WeAreNotWaiting movement to their research collaborations with endocrinologists and detente with the FDA. I argue that OpenAPS user-contributors formalized their expertise in three steps: First, they broke the OpenAPS algorithm into modules so that prospective users must become experts to assemble it. Second, they lowered this barrier to entry by facilitating the socialization of new user-contributors with a training ritual. And third, they intervened in the strained endocrinologist-patient relationship. These tactics-restricting membership, reproducing expertise, and realigning interests-won the respect of credentialled experts who saw themselves in the OpenAPS community's image. While not all EHMs follow this trajectory, this case demonstrates that lay expertise can mature and assume new institutional forms without relying on commercialization or patronage.

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来源期刊
Social Studies of Science
Social Studies of Science 管理科学-科学史与科学哲学
CiteScore
5.70
自引率
6.70%
发文量
45
审稿时长
>12 weeks
期刊介绍: Social Studies of Science is an international peer reviewed journal that encourages submissions of original research on science, technology and medicine. The journal is multidisciplinary, publishing work from a range of fields including: political science, sociology, economics, history, philosophy, psychology social anthropology, legal and educational disciplines. This journal is a member of the Committee on Publication Ethics (COPE)
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