语言技能影响脆性 X 综合征青少年的过渡规划。

IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL
Olivia Boorom, Heather Fielding-Gebhardt, Shelley Bredin-Oja, Kandace Fleming, Rebecca E Swinburne Romine, Nancy Brady
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引用次数: 0

摘要

脆性X综合征(FXS)患者及其父母在经历青春期与成年期之间的关键过渡期时会有各种不同的体验。我们对 47 位 FXS 青少年母亲(平均年龄为 15.89 岁)的半结构式访谈进行了分析,以确定母亲在青少年时期不断变化的期望,以及父母在工作和中学后教育方面的目标。母亲的工作和教育目标与儿童的语言技能和自闭症特征等因素有关。语言技能较低与报告职业目标的可能性较低有关。研究结果表明,在这一关键时期,语言能力较低的FXS青少年不太可能制定成年后的职业规划,他们可能需要更多的过渡规划援助。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Language Skills Influence Transition Planning in Adolescents With Fragile X Syndrome.

Individuals with fragile X syndrome (FXS) and their parents have a range of experiences navigating the crucial transition period between adolescence and adulthood. Semistructured interviews of 47 mothers of adolescents with FXS (mean child age = 15.89 years) were analyzed to identify mothers' changing expectations during the adolescent period and parent goals related to work and postsecondary education. Mothers' work and education goals were explored in relation to child factors such as language skills and autism characteristics. Lower language skills were associated with lower likelihood of reporting vocational goals. Results suggest that adolescents with FXS with lower language ability are less likely to have vocational plans for adulthood during this critical period and may need greater transition planning assistance.

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来源期刊
CiteScore
3.10
自引率
4.80%
发文量
47
期刊介绍: The American Journal on Intellectual and Developmental Disabilities (Print ISSN: 1944–7515; Online ISSN: 1944–7558) is published by the American Association on Intellectual and Developmental Disabilities. It is a scientifi c, scholarly, and archival multidisciplinary journal for reporting original contributions of the highest quality to knowledge of intellectual disabilities, its causes, treatment, and prevention.
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