{"title":"多发性硬化症患者的生活质量、自我效能感和社会支持之间的关系。","authors":"Ilkay Zeynep Gurbuz, Semiha Akin","doi":"10.12968/ijpn.2023.29.12.598","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Multiple sclerosis (MS) causes patients' perceptions of self-efficacy and social support to decline. Patients with MS have to change day-to-day activities and encounter various physical and psychosocial problems while adapting to the new lifestyle.</p><p><strong>Aims: </strong>The research aimed to define the quality of life, self-efficacy and social support in patients with MS and to determine the relationship between quality of life, perception of self-efficacy and perceived social support. It is descriptive and correlational research. Data were collected using surveys.</p><p><strong>Methods: </strong>The sample consisted of 116 patients with MS. Patients who applied at the neurology in-patient and outpatient clinics between March 2021 and September 2021 were assessed for inclusion criteria. Written and verbal consent was obtained. The patients read and answered the questionnaires. Their quality of life was assessed using the Functional Assessment of Multiple Sclerosis Scale (FAMS). Self-efficacy perception was measured using the General Self-Efficacy Scale (GSE), and social support was assessed using the Multidimensional Scale of Perceived Social Support (MSPSS).</p><p><strong>Results: </strong>The study found that the other concerns, symptoms, thinking and fatigue were most negatively affected the quality of life subscales. Perception of self-efficacy was found to be moderate, while social support was high. Analyses revealed a positive correlation between MSPSS scores, FAMS scores and GSE scores (p<0.05).</p><p><strong>Conclusion: </strong>Health professionals need to provide education and counselling to manage MS-related symptoms, use therapeutic communication techniques to improve self-efficacy, give positive reinforcement and cooperate with families to increase social support.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 12","pages":"598-612"},"PeriodicalIF":0.0000,"publicationDate":"2023-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Relationship between quality of life, self-efficacy and social support in patients with multiple sclerosis.\",\"authors\":\"Ilkay Zeynep Gurbuz, Semiha Akin\",\"doi\":\"10.12968/ijpn.2023.29.12.598\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Multiple sclerosis (MS) causes patients' perceptions of self-efficacy and social support to decline. Patients with MS have to change day-to-day activities and encounter various physical and psychosocial problems while adapting to the new lifestyle.</p><p><strong>Aims: </strong>The research aimed to define the quality of life, self-efficacy and social support in patients with MS and to determine the relationship between quality of life, perception of self-efficacy and perceived social support. It is descriptive and correlational research. Data were collected using surveys.</p><p><strong>Methods: </strong>The sample consisted of 116 patients with MS. Patients who applied at the neurology in-patient and outpatient clinics between March 2021 and September 2021 were assessed for inclusion criteria. Written and verbal consent was obtained. The patients read and answered the questionnaires. Their quality of life was assessed using the Functional Assessment of Multiple Sclerosis Scale (FAMS). Self-efficacy perception was measured using the General Self-Efficacy Scale (GSE), and social support was assessed using the Multidimensional Scale of Perceived Social Support (MSPSS).</p><p><strong>Results: </strong>The study found that the other concerns, symptoms, thinking and fatigue were most negatively affected the quality of life subscales. Perception of self-efficacy was found to be moderate, while social support was high. Analyses revealed a positive correlation between MSPSS scores, FAMS scores and GSE scores (p<0.05).</p><p><strong>Conclusion: </strong>Health professionals need to provide education and counselling to manage MS-related symptoms, use therapeutic communication techniques to improve self-efficacy, give positive reinforcement and cooperate with families to increase social support.</p>\",\"PeriodicalId\":94055,\"journal\":{\"name\":\"International journal of palliative nursing\",\"volume\":\"29 12\",\"pages\":\"598-612\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-12-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International journal of palliative nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.12968/ijpn.2023.29.12.598\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International journal of palliative nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.12968/ijpn.2023.29.12.598","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Relationship between quality of life, self-efficacy and social support in patients with multiple sclerosis.
Background: Multiple sclerosis (MS) causes patients' perceptions of self-efficacy and social support to decline. Patients with MS have to change day-to-day activities and encounter various physical and psychosocial problems while adapting to the new lifestyle.
Aims: The research aimed to define the quality of life, self-efficacy and social support in patients with MS and to determine the relationship between quality of life, perception of self-efficacy and perceived social support. It is descriptive and correlational research. Data were collected using surveys.
Methods: The sample consisted of 116 patients with MS. Patients who applied at the neurology in-patient and outpatient clinics between March 2021 and September 2021 were assessed for inclusion criteria. Written and verbal consent was obtained. The patients read and answered the questionnaires. Their quality of life was assessed using the Functional Assessment of Multiple Sclerosis Scale (FAMS). Self-efficacy perception was measured using the General Self-Efficacy Scale (GSE), and social support was assessed using the Multidimensional Scale of Perceived Social Support (MSPSS).
Results: The study found that the other concerns, symptoms, thinking and fatigue were most negatively affected the quality of life subscales. Perception of self-efficacy was found to be moderate, while social support was high. Analyses revealed a positive correlation between MSPSS scores, FAMS scores and GSE scores (p<0.05).
Conclusion: Health professionals need to provide education and counselling to manage MS-related symptoms, use therapeutic communication techniques to improve self-efficacy, give positive reinforcement and cooperate with families to increase social support.