拥抱我的造口:带造口生活的印度尼西亚结直肠癌幸存者的社会心理适应。

IF 2.4 3区 医学 Q1 NURSING
Cancer Nursing Pub Date : 2025-03-01 Epub Date: 2023-12-19 DOI:10.1097/NCC.0000000000001303
Yati Afiyanti, Ariesta Milanti, Kemala Rita Wahidi, Margaret Fitch
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引用次数: 0

摘要

背景:结直肠癌(CRC)手术治疗后,大多数幸存者需要造口,这可能导致他们的心理和社会功能受到限制。印尼的 CRC 幸存者如何适应造口生活仍是一个研究不足的领域:本研究旨在探讨印尼造口手术幸存者在社会心理适应方面的生活经验:本研究采用海德格尔的解释现象学方法。采用半结构式深度访谈,从 11 名 CRC 幸存者处收集数据,直至饱和。采用海德格尔立场的主题分析法对数据进行分析:结果:确定了三个主题及相应的次主题:(1) 实现自我和解(次主题:造口是救星、接受造口的存在、作为造口人充满自信);(2) 获得巨大的社会支持(次主题:获得来自伴侣、家庭和社区以及造口同伴的支持);(3) 在日常生活中做出实际调整(次主题:在衣着、饮食、体力活动和锻炼、宗教活动和旅行方面做出调整)。这三个主题描述了 "CRC 造口幸存者的生活心理体验 "的本质:与以往主要在西方国家进行的研究结果不同,大多数印尼造口CRC幸存者都描述了他们对造口的积极社会心理适应。在这项工作中,社会支持和文化宗教方面对这种适应做出了重要贡献:医护人员,尤其是护士,可以利用这些知识为造口的 CRC 幸存者提供社会心理支持,以促进其顺利适应和调整。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Embracing My Stoma: Psychosocial Adjustment of Indonesian Colorectal Cancer Survivors Living With a Stoma.

Background: After surgical treatment of colorectal cancer (CRC), most survivors need to have an ostomy, which can lead to restrictions in their psychological and social functioning. How Indonesian CRC survivors adjust to living well with the stoma remains an understudied area.

Objective: This study aimed to explore the lived experiences of Indonesian CRC survivors living with a stoma regarding their psychosocial adjustment.

Methods: This study adopted Heidegger's interpretive phenomenology approach. Using semistructured in-depth interviews, data were collected until saturation from 11 CRC survivors. Data were analyzed using thematic analysis, with a Heideggerian stance.

Results: Three themes with corresponding subthemes were identified: (1) achieving self-reconciliation (subthemes: stoma as a savior, embracing the stoma's existence, being confident as an ostomate), (2) getting tremendous social support (subthemes: getting support from partner, family and community, and peer ostomates), and (3) making practical adjustments in daily life (subthemes: adjustment in clothing, food and drink, physical activities and exercise, religious activities, and traveling). These 3 themes describe the essence of the "lived psychosocial experiences of the CRC survivors with stoma."

Conclusions: In contrast to previous study findings conducted primarily in Western countries, most of the Indonesian CRC survivors living with a stoma described positive psychosocial adjustment regarding their ostomy. In this work, social support and cultural-religious aspects made a significant contribution to this adjustment.

Implications for practice: Healthcare professionals, especially nurses, can use this knowledge in providing psychosocial support for CRC survivors with ostomy to facilitate a smooth adaptation and adjustment journey.

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来源期刊
Cancer Nursing
Cancer Nursing 医学-护理
CiteScore
4.80
自引率
3.80%
发文量
244
审稿时长
6-12 weeks
期刊介绍: Each bimonthly issue of Cancer Nursing™ addresses the whole spectrum of problems arising in the care and support of cancer patients--prevention and early detection, geriatric and pediatric cancer nursing, medical and surgical oncology, ambulatory care, nutritional support, psychosocial aspects of cancer, patient responses to all treatment modalities, and specific nursing interventions. The journal offers unparalleled coverage of cancer care delivery practices worldwide, as well as groundbreaking research findings and their practical applications.
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