为处于社会隔离状态的被诊断为痴呆症患者的照护者提供社会心理干预。

IF 1.4 Q4 CLINICAL NEUROLOGY
Dementia and Geriatric Cognitive Disorders Extra Pub Date : 2023-11-18 eCollection Date: 2023-01-01 DOI:10.1159/000535207
Grace Wei, Olivier Piguet, Fiona Kumfor
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引用次数: 0

摘要

导言:越来越多的研究表明,社会隔离对痴呆症患者及其照护者的健康和心理健康有负面影响。本研究调查了在 COVID-19 大流行封锁期间对痴呆症照护者进行社会心理干预的效果:研究招募了 23 名在社区生活的被确诊为痴呆症患者的家庭照护者,并为他们提供了一个在线心理教育工具包,旨在提高他们的健康素养、痴呆症的社会和行为症状管理、照护者的社会参与和应对技能。根据照护者所照护的痴呆症患者的病情严重程度,照护者被分为 "轻度 "和 "中度 "两组。在基线和两周后对结果进行评估,包括神经精神症状的痛苦和严重程度、照护者的自我效能感和负担、社交网络和孤独感:与轻度组的照护者相比,中度组照护者的神经精神症状的痛苦程度(p = 0.001)和严重程度(p < 0.001)更高,照护者的负担(p = 0.003)更大。干预后,两组照护者都表示社交网络有所增加(p = 0.001)。此外,中度组的照护者表示神经精神症状的困扰明显减轻(p = 0.013),照护者控制烦躁想法的自我效能得到提高(p = 0.040),孤独感减少(p = 0.023):本研究表明,社会心理干预可改善痴呆症患者照护者的疗效,尤其是那些照护病情较重患者的照护者。这项研究的结果将为支持服务的发展提供参考,以满足社会隔离期间和大流行后痴呆症患者及其照护者不断变化的需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Psychosocial Intervention for Carers of Individuals Diagnosed with Dementia in Social Isolation.

Introduction: Growing research has shown the negative impact of social isolation on the health and psychological well-being of individuals with dementia and their carers. This study investigated the effectiveness of a psychosocial intervention for dementia carers during a lockdown period of the COVID-19 pandemic.

Methods: Twenty-three family carers of individuals diagnosed with dementia living in the community were recruited and provided with an online psychoeducation toolkit that aims to improve health literacy, management of social and behavioural symptoms in dementia, carer social engagement, and coping skills. Carers were divided into "mild" or "moderate" groups based on the disease severity of the person with dementia they cared for. Outcome measures including distress and severity of neuropsychiatric symptoms, carer self-efficacy and burden, social network, and feelings of loneliness were assessed at baseline and 2 weeks later.

Results: Carers in the moderate group reported higher levels of distress (p = 0.001) and severity (p < 0.001) of neuropsychiatric symptoms and greater carer burden (p = 0.003) than carers in the mild group. Following the intervention, both groups reported increased social networks (p = 0.001). In addition, carers in the moderate group reported significantly reduced distress for neuropsychiatric symptoms (p = 0.013), enhanced carer self-efficacy for controlling upsetting thoughts (p = 0.040), and decreased loneliness (p = 0.023).

Conclusions: This study demonstrated that psychosocial interventions improve outcomes for carers of individuals with dementia, particularly those caring for individuals with greater disease severity. Findings from this study will inform the development of support services that meet the evolving needs of individuals with dementia and their carers in social isolation, during and in a post-pandemic context.

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来源期刊
Dementia and Geriatric Cognitive Disorders Extra
Dementia and Geriatric Cognitive Disorders Extra Medicine-Psychiatry and Mental Health
CiteScore
4.30
自引率
0.00%
发文量
18
审稿时长
9 weeks
期刊介绍: This open access and online-only journal publishes original articles covering the entire spectrum of cognitive dysfunction such as Alzheimer’s and Parkinson’s disease, Huntington’s chorea and other neurodegenerative diseases. The journal draws from diverse related research disciplines such as psychogeriatrics, neuropsychology, clinical neurology, morphology, physiology, genetic molecular biology, pathology, biochemistry, immunology, pharmacology and pharmaceutics. Strong emphasis is placed on the publication of research findings from animal studies which are complemented by clinical and therapeutic experience to give an overall appreciation of the field. Dementia and Geriatric Cognitive Disorders Extra provides additional contents based on reviewed and accepted submissions to the main journal Dementia and Geriatric Cognitive Disorders Extra .
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