艾米丽为尊严而战:多发性硬化症女性患者的特异性案例研究。

IF 2.6 3区 医学 Q1 NURSING
Nursing Philosophy Pub Date : 2024-01-01 Epub Date: 2023-12-20 DOI:10.1111/nup.12470
Lucia Podolinská, Juraj Čáp
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引用次数: 0

摘要

尊严是护理工作的基本价值和核心理念之一。尊严可能会因生活的剧烈变化而受到威胁;因此,本案例研究旨在探讨一位患有多发性硬化症的妇女所体验到的尊严感。本研究采用解释现象学分析法,通过与 45 岁的艾米丽进行面对面的半结构式访谈收集数据。这项研究获得了当地伦理委员会的批准。研究确定了六个个人经历主题:被生病的身体支配;无声无息的发展;失去独立能力,成为家庭的负担;为生命的意义而奋斗的意志;在关系中保持尊严;在更加脆弱的时期给予有尊严的照顾。艾米丽的尊严是建立在努力争取有意义的生活、充分发挥自己的潜能、保持日常生活活动的独立性和人际关系的支持之上的。功能能力的持续变化、自我控制能力的丧失以及不确定的未来都对她的尊严体验产生了负面影响。在有尊严的医疗保健方面,她认为个人护理和保持自主非常重要。通过对典型案例的研究,可以更好地了解多发性硬化症女性患者的经历。可以采取干预措施,以支持她的尊严,提高她的生活质量,并促进以个人为导向的医疗保健。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Emily's struggle for dignity: An idiographic case study of a woman with multiple sclerosis.

Dignity is one of the essential values and central concepts in nursing care. Dignity can be threatened due to radical life changes; therefore, this idiographic case study aimed to explore the sense of dignity experienced by a woman with multiple sclerosis. An interpretative phenomenological analysis was adopted, using data collected through a face-to-face semistructured interview with Emily, a 45-year-old woman. The study was approved by the local ethics committee. Six personal experiential themes were identified: To be ruled by a sick body; Silent progression; Loss of independence as a burden for the family; Will to fight for the meaning of life; Maintaining dignity-in-relation; Dignified care in a period of greater vulnerability. Emily's dignity is based on the effort to fight for a meaningful life, utilization of her full potential, maintain independence in activities of daily living and support in relationships. Continuous changes in functional ability, loss of self-control and an uncertain future have a negative impact on the experience of her dignity. In the context of dignified health care, she considers individual care and maintaining autonomy important. The idiographic case study can contribute to a better understanding of the experience of a woman suffering from multiple sclerosis. It is possible to carry out interventions that aim to support her dignity, improve her quality of life and contribute to individually oriented health care.

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来源期刊
CiteScore
4.80
自引率
9.10%
发文量
39
审稿时长
>12 weeks
期刊介绍: Nursing Philosophy provides a forum for discussion of philosophical issues in nursing. These focus on questions relating to the nature of nursing and to the phenomena of key relevance to it. For example, any understanding of what nursing is presupposes some conception of just what nurses are trying to do when they nurse. But what are the ends of nursing? Are they to promote health, prevent disease, promote well-being, enhance autonomy, relieve suffering, or some combination of these? How are these ends are to be met? What kind of knowledge is needed in order to nurse? Practical, theoretical, aesthetic, moral, political, ''intuitive'' or some other? Papers that explore other aspects of philosophical enquiry and analysis of relevance to nursing (and any other healthcare or social care activity) are also welcome and might include, but not be limited to, critical discussions of the work of nurse theorists who have advanced philosophical claims (e.g., Benner, Benner and Wrubel, Carper, Schrok, Watson, Parse and so on) as well as critical engagement with philosophers (e.g., Heidegger, Husserl, Kuhn, Polanyi, Taylor, MacIntyre and so on) whose work informs health care in general and nursing in particular.
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