{"title":"“令人窒息”:慢性呼吸系统疾病的后果。","authors":"S J Williams, M R Bury","doi":"10.3109/03790798909166409","DOIUrl":null,"url":null,"abstract":"<p><p>Chronic obstructive airways disease (COAD) is a major, though neglected, medical and social problem in the United Kingdom today. Dyspnoea is one of the most distressing and disabling symptoms of COAD, which is itself the largest single cause of absence from work in the United Kingdom. This paper reports on 92 patients suffering from COAD, who were interviewed in order to assess impairment, disability and handicap, and a smaller subsample of 24 of these patients who were followed-up using open-ended, semi-structured, tape-recorded interviews in order to cover in more detail some of the issues raised in the first quantitative stage of the study. Low correlations were found between lung function and disability (-0.38 p less than 0.001), accounting for only 14% of the variance, and high correlations between measures of dyspnoea and disability (-0.90 p less than 0.001). Major areas of disability and handicap included: household management, ambulation, sleep and rest, recreation and pastimes, and work. Financial problems and difficulties, housing problems and problems of social isolation were also frequently reported. The paper then attempts to explore the relationship between impairment, disability and handicap, drawing on both the quantitative and qualitative data collected in order to illustrate the variable nature of this relationship. The paper concludes by suggesting both the need for a more integrated approach to the care and rehabilitation of COAD patients and their families, and for a complementary social perspective and approach to COAD and its treatment.</p>","PeriodicalId":77547,"journal":{"name":"International disability studies","volume":"11 3","pages":"114-20"},"PeriodicalIF":0.0000,"publicationDate":"1989-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/03790798909166409","citationCount":"29","resultStr":"{\"title\":\"'Breathtaking': the consequences of chronic respiratory disorder.\",\"authors\":\"S J Williams, M R Bury\",\"doi\":\"10.3109/03790798909166409\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Chronic obstructive airways disease (COAD) is a major, though neglected, medical and social problem in the United Kingdom today. 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引用次数: 29
摘要
慢性阻塞性呼吸道疾病(COAD)是当今英国一个主要但被忽视的医疗和社会问题。呼吸困难是COAD最令人痛苦和致残的症状之一,它本身就是英国缺勤的最大单一原因。本文报告了92名COAD患者,对他们进行了访谈,以评估损伤、残疾和障碍,并对其中24名患者进行了较小的子样本随访,使用开放式、半结构化、录音访谈,以更详细地涵盖研究第一定量阶段提出的一些问题。肺功能与残疾之间存在低相关性(-0.38 p < 0.001),仅占方差的14%,而呼吸困难与残疾之间存在高相关性(-0.90 p < 0.001)。残疾和残障的主要领域包括:家务管理、行走、睡眠和休息、娱乐和消遣以及工作。还经常报告财政问题和困难、住房问题和社会孤立问题。然后,本文试图探讨损害、残疾和障碍之间的关系,利用所收集的定量和定性数据,以说明这种关系的可变性质。最后,本文建议对COAD患者及其家属的护理和康复采取更综合的方法,并对COAD及其治疗采取补充的社会观点和方法。
'Breathtaking': the consequences of chronic respiratory disorder.
Chronic obstructive airways disease (COAD) is a major, though neglected, medical and social problem in the United Kingdom today. Dyspnoea is one of the most distressing and disabling symptoms of COAD, which is itself the largest single cause of absence from work in the United Kingdom. This paper reports on 92 patients suffering from COAD, who were interviewed in order to assess impairment, disability and handicap, and a smaller subsample of 24 of these patients who were followed-up using open-ended, semi-structured, tape-recorded interviews in order to cover in more detail some of the issues raised in the first quantitative stage of the study. Low correlations were found between lung function and disability (-0.38 p less than 0.001), accounting for only 14% of the variance, and high correlations between measures of dyspnoea and disability (-0.90 p less than 0.001). Major areas of disability and handicap included: household management, ambulation, sleep and rest, recreation and pastimes, and work. Financial problems and difficulties, housing problems and problems of social isolation were also frequently reported. The paper then attempts to explore the relationship between impairment, disability and handicap, drawing on both the quantitative and qualitative data collected in order to illustrate the variable nature of this relationship. The paper concludes by suggesting both the need for a more integrated approach to the care and rehabilitation of COAD patients and their families, and for a complementary social perspective and approach to COAD and its treatment.