Ben Younan, Mikaela Jorgensen, Jeffrey Chan, Teresa Winata, Donna Gillies
{"title":"神经发育障碍患者限制性练习的使用：系统回顾","authors":"Ben Younan, Mikaela Jorgensen, Jeffrey Chan, Teresa Winata, Donna Gillies","doi":"10.1007/s41252-023-00367-w","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>Restrictive practices (RP) include any practice or intervention that infringes on the rights and freedom of movement of people with disability, including those with neurodevelopmental disorders (NDD). The use of RP is inconsistent with the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The objective of this systematic review was to estimate the use of RP internationally and identify factors associated with RP use.</p><h3>Methods</h3><p>Six electronic databases alongside a comprehensive online search were conducted for literature up to 12th December 2022. This systematic review included any publication published within the past 18 years that reported the rate of RP in at least 250 people in residential, community, and hospital settings who had a NDD.</p><h3>Results</h3><p>Twenty publications reporting thirty datasets were included in this review. Sample sizes ranged from 268 to 107,392. Overall rates of RP ranged from 6% to 78% across different timeframes and populations. Chemical restraint was the most commonly reported RP, with 12 of 20 publications (60%) reporting rates across one or more timeframes. Higher prevalence of RP were found in populations with higher reported mental illness and behaviors of concern.</p><h3>Conclusion</h3><p>The very considerable differences between publications and limited data means that the rates of RP are variable. The high variability appears to be attributable to methodological differences. Requiring the reporting of RP through legislation is one mechanism that can support better monitoring of RP and ultimately ensure progress is being made towards CRPD obligations to uphold human rights.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3000,"publicationDate":"2023-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Restrictive Practice Use in People with Neurodevelopmental Disorders: A Systematic Review\",\"authors\":\"Ben Younan, Mikaela Jorgensen, Jeffrey Chan, Teresa Winata, Donna Gillies\",\"doi\":\"10.1007/s41252-023-00367-w\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><p>Restrictive practices (RP) include any practice or intervention that infringes on the rights and freedom of movement of people with disability, including those with neurodevelopmental disorders (NDD). The use of RP is inconsistent with the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The objective of this systematic review was to estimate the use of RP internationally and identify factors associated with RP use.</p><h3>Methods</h3><p>Six electronic databases alongside a comprehensive online search were conducted for literature up to 12th December 2022. This systematic review included any publication published within the past 18 years that reported the rate of RP in at least 250 people in residential, community, and hospital settings who had a NDD.</p><h3>Results</h3><p>Twenty publications reporting thirty datasets were included in this review. Sample sizes ranged from 268 to 107,392. Overall rates of RP ranged from 6% to 78% across different timeframes and populations. Chemical restraint was the most commonly reported RP, with 12 of 20 publications (60%) reporting rates across one or more timeframes. Higher prevalence of RP were found in populations with higher reported mental illness and behaviors of concern.</p><h3>Conclusion</h3><p>The very considerable differences between publications and limited data means that the rates of RP are variable. The high variability appears to be attributable to methodological differences. Requiring the reporting of RP through legislation is one mechanism that can support better monitoring of RP and ultimately ensure progress is being made towards CRPD obligations to uphold human rights.</p></div>\",\"PeriodicalId\":36163,\"journal\":{\"name\":\"Advances in Neurodevelopmental Disorders\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2023-10-19\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Advances in Neurodevelopmental Disorders\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://link.springer.com/article/10.1007/s41252-023-00367-w\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Neurodevelopmental Disorders","FirstCategoryId":"1085","ListUrlMain":"https://link.springer.com/article/10.1007/s41252-023-00367-w","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
引用次数: 0
摘要
目标 限制性做法（RP）包括任何侵犯包括神经发育障碍（NDD）患者在内的残疾人的权利和行动自由的做法或干预措施。使用限制性措施不符合联合国《残疾人权利公约》（CRPD）的规定。本系统性综述的目的是估算国际上使用RP的情况，并确定与使用RP相关的因素。方法对截至2022年12月12日的文献进行了全面的在线检索，同时还对六个电子数据库进行了检索。本系统性综述包括过去 18 年内发表的任何出版物，这些出版物报告了在住宅、社区和医院环境中至少 250 名患有 NDD 的患者的 RP 使用率。样本量从 268 到 107,392 不等。在不同的时间范围和人群中，RP 的总体比例从 6% 到 78% 不等。化学限制是最常报道的 RP，20 篇文献中有 12 篇（60%）报道了一个或多个时间段的 RP 发生率。在报告精神疾病和关注行为较多的人群中，RP 的发生率较高。差异大似乎是由于方法上的差异造成的。通过立法要求报告 RP 是一种机制，有助于更好地监测 RP，并最终确保在履行《残疾人权利公约》维护人权的义务方面取得进展。
Restrictive Practice Use in People with Neurodevelopmental Disorders: A Systematic Review
Objectives
Restrictive practices (RP) include any practice or intervention that infringes on the rights and freedom of movement of people with disability, including those with neurodevelopmental disorders (NDD). The use of RP is inconsistent with the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The objective of this systematic review was to estimate the use of RP internationally and identify factors associated with RP use.
Methods
Six electronic databases alongside a comprehensive online search were conducted for literature up to 12th December 2022. This systematic review included any publication published within the past 18 years that reported the rate of RP in at least 250 people in residential, community, and hospital settings who had a NDD.
Results
Twenty publications reporting thirty datasets were included in this review. Sample sizes ranged from 268 to 107,392. Overall rates of RP ranged from 6% to 78% across different timeframes and populations. Chemical restraint was the most commonly reported RP, with 12 of 20 publications (60%) reporting rates across one or more timeframes. Higher prevalence of RP were found in populations with higher reported mental illness and behaviors of concern.
Conclusion
The very considerable differences between publications and limited data means that the rates of RP are variable. The high variability appears to be attributable to methodological differences. Requiring the reporting of RP through legislation is one mechanism that can support better monitoring of RP and ultimately ensure progress is being made towards CRPD obligations to uphold human rights.
期刊介绍：
Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
