2019冠状病毒病大流行期间，以家庭为中心的服务对提高残疾儿童家庭生活质量和减轻痛苦的贡献

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

Focus on Autism and Other Developmental Disabilities Pub Date : 2023-10-06 DOI:10.1177/10883576231202700

Ayelet Gur, Tali-Noy Hindi, Lilach Krisi-Kadosh

{"title":"2019冠状病毒病大流行期间，以家庭为中心的服务对提高残疾儿童家庭生活质量和减轻痛苦的贡献","authors":"Ayelet Gur, Tali-Noy Hindi, Lilach Krisi-Kadosh","doi":"10.1177/10883576231202700","DOIUrl":null,"url":null,"abstract":"This study examines family distress and quality of life among families of children with disabilities during the first wave of the COVID-19 pandemic in Israel. It considers the role of family resources, a sense of community, and the services provided by the Israeli family-centered program (IFCP). One hundred eighty-two parents of children with disabilities participated in this study through an online survey. Structural equation modeling showed that extensive family resources, better operation of the IFCP, and a sense of community were associated with a better quality of life. Lack of family resources was associated with family distress. A regression-based path analysis indicated that this association was moderated by components of the IFCP. Family-centered services were associated with a family’s quality of life and experience of distress in times of national crisis. The results highlight the importance of the partnership between parents of children with disabilities and service providers.","PeriodicalId":12133,"journal":{"name":"Focus on Autism and Other Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":1.2000,"publicationDate":"2023-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The Contribution of Family-Centered Services to Enhanced Quality of Life and Reduced Distress in Families of Children With Disabilities During the COVID-19 Pandemic\",\"authors\":\"Ayelet Gur, Tali-Noy Hindi, Lilach Krisi-Kadosh\",\"doi\":\"10.1177/10883576231202700\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"This study examines family distress and quality of life among families of children with disabilities during the first wave of the COVID-19 pandemic in Israel. It considers the role of family resources, a sense of community, and the services provided by the Israeli family-centered program (IFCP). One hundred eighty-two parents of children with disabilities participated in this study through an online survey. Structural equation modeling showed that extensive family resources, better operation of the IFCP, and a sense of community were associated with a better quality of life. Lack of family resources was associated with family distress. A regression-based path analysis indicated that this association was moderated by components of the IFCP. Family-centered services were associated with a family’s quality of life and experience of distress in times of national crisis. The results highlight the importance of the partnership between parents of children with disabilities and service providers.\",\"PeriodicalId\":12133,\"journal\":{\"name\":\"Focus on Autism and Other Developmental Disabilities\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2023-10-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Focus on Autism and Other Developmental Disabilities\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/10883576231202700\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Focus on Autism and Other Developmental Disabilities","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/10883576231202700","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}

引用次数: 0

摘要

本研究调查了以色列第一波COVID-19大流行期间残疾儿童家庭的家庭困境和生活质量。它考虑了家庭资源的作用、社区意识以及以色列以家庭为中心的方案(IFCP)提供的服务。182名残疾儿童的父母通过在线调查参与了本研究。结构方程模型显示，广泛的家庭资源、更好的IFCP运作和社区意识与更好的生活质量有关。缺乏家庭资源与家庭窘迫有关。基于回归的路径分析表明，这种关联被IFCP的组成部分所缓和。以家庭为中心的服务与家庭的生活质量和在国家危机时期的痛苦经历有关。研究结果突出了残疾儿童父母与服务提供者之间伙伴关系的重要性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

The Contribution of Family-Centered Services to Enhanced Quality of Life and Reduced Distress in Families of Children With Disabilities During the COVID-19 Pandemic

This study examines family distress and quality of life among families of children with disabilities during the first wave of the COVID-19 pandemic in Israel. It considers the role of family resources, a sense of community, and the services provided by the Israeli family-centered program (IFCP). One hundred eighty-two parents of children with disabilities participated in this study through an online survey. Structural equation modeling showed that extensive family resources, better operation of the IFCP, and a sense of community were associated with a better quality of life. Lack of family resources was associated with family distress. A regression-based path analysis indicated that this association was moderated by components of the IFCP. Family-centered services were associated with a family’s quality of life and experience of distress in times of national crisis. The results highlight the importance of the partnership between parents of children with disabilities and service providers.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Focus on Autism and Other Developmental Disabilities Multiple-

CiteScore

3.50

自引率

5.00%

发文量

期刊介绍： Focus on Autism and Other Developmental Disabilities addresses issues concerning individuals with autism and other developmental disabilities and their families. Manuscripts reflect a wide range of disciplines, including education, psychology, psychiatry, medicine, physical therapy, occupational therapy, speech/language pathology, social work, and related areas. The journal’s editorial staff seeks manuscripts from diverse philosophical and theoretical positions.