运动障碍患者适应内部和环境变化的经验

Karolina Matelionytė, Diana Karanauskiene
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摘要

背景。在立陶宛,从2017年到2018年,16-64岁年龄组的残疾人比例从18.3%上升到19.4%(《残疾人统计数据》,2018年)。根据2014年欧洲统计数据,欧洲16岁以上残疾人中有27.1%的人表示他们的活动普遍受到限制(欧洲社会和经济政策中心,2017)。这一现状的意义增加了本研究的相关性,因为对残疾研究的重视不够;来自世界各地的研究人员表示,这一领域很少受到他们的关注(Rios等人,2016;牧羊人,2016;Williams & Moore, 2011)。方法。半结构化访谈,内容定性分析。结果。对自己身体的负面反应以及残疾后感知到的不可逆转的身体变化会引发负面情绪、有害行为,并限制个人与环境的互动。对于那些有残疾的人来说,与环境的互动包括进入建筑物、伸手取物、外出或接受某些服务的困难。当评估与他人的沟通时,在获得残疾后,在许多情况下,与朋友的沟通恶化,但与家人和亲戚的沟通变得更好。克服残疾的过程是系统地进行的——接受残疾的获得并适应所发生的变化;参加体育运动或社区活动,以增强自己的身体、情感和参与社会生活;表达社会上普遍存在的关于残疾的不平等现象,并提出改善这种情况的可能方法。结论。获得性残疾的人会遇到与环境变化的内在反应和相互作用,这就产生了克服和适应获得性残疾的战略需要。关键词:运动障碍,获得性残疾,内在变化,环境变化,经历。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of People who Acquire Motor Disability, in Adapting to Internal and Environment Changes
Background. In Lithuania, from 2017 to 2018, in the age group of 16–64 years, the number of people with a disability increased from 18.3% to 19.4% (Statistics on Persons with Disabilities, 2018). According to the 2014 European Statistical Data, as many as 27.1% of over 16-year-olds with a disability in Europe reported prevailing limitations on their activity (Centre for European Social and Economic Policy, 2017). The significance of this current situation increases the relevance of this study, because insufficient attention is paid to disability research; researchers from around the world state that this area receives little of their attention (Rios et al., 2016; Shepherd, 2016; Williams & Moore, 2011). Methods. semi-structured interview, qualitative analysis of content. Results. Negative reaction towards one’s own body and the perceived irreversible physical changes after acquiring a disability provokes negative feelings, harmful behavior, and limits one’s interaction with the environment. For those who acquire a disability, interaction with the environment encompasses difficulties in entering buildings, reaching for objects, moving outside or receiving certain services. When assessing communication with other people, after acquiring a disability, in many cases, communication with friends worsens, but becomes better with family and relatives. The process of overcoming the disability happens systematically – accepting the acquisition of disability and adapting to the changes that occur; taking up sports or communal activity in order to strengthen oneself physically, emotionally and engage in social life; expressing the inequalities prevalent in society regarding disability and the proposed possible ways to improve the situation. Conclusion. People who acquire a disability encounter internal reactions and interaction with the changes in their environment, which create the strategic need to overcome the acquired disability and adapt to it. Keywords: movement disability, acquired disability, internal changes, environment changes, experiences.
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