CF儿童家庭周末互助会。

Acta Universitatis Carolinae. Medica Pub Date : 1990-01-01
M Vyhnálek, V Vávrová
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引用次数: 0

摘要

自1977年以来,为患有CF儿童的家庭多次组织了为期三天的周末工作会议。有几次,97个家庭,187名家长和182名儿童(其中101名儿童患者年龄在4-17岁之间)参加了研究。一次会议邀请了11个完整的家庭。工作周末的完整家庭会议(WWM)本身就通过建模的方式将父母的优势、主题导向的讨论小组和心理治疗的原则联系起来。为了建立家长小组计划,首先通过问卷调查来测试家长对CF的了解程度。其他问卷包括父母的期望和他们对心理治疗的评价。WWM的目标是:1。提高家长对疾病的认识;纠正对疾病的错误观念;4.学习父母双方的康复治疗。4 .使父母双方以及父母与保健人员之间能够进行公开讨论;5 .通过刺激家庭的自由时间,改善家庭功能。如果父母处于生育年龄,催化家庭的生育决策——在产前诊断方法的基础上启发新家庭的计划。CF是一种慢性、致命的遗传性疾病。CF患者的综合治疗可使其寿命延长至成年期。同时,CF产前诊断的可能性降低了家庭中另一个受影响孩子出生的风险。(摘要删节250字)
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The supporting weekend's meeting of families with CF children.

Since 1977 3 day-weekend's working meetings have been repeatedly organized for the families with CF children. Several times 97 families comparising 187 parents and 182 children--(of these 101 child patients aged 4-17 years)--took part in them. For one meeting 11 complete families are invited. The working weekend's meeting of complete families (WWM) connects in itself the advantages of parental, thematically oriented discussion group and the principles of psychotherapy by means of modelling. For establishing the program of parents' groups, first of all the level of knowledge on CF was tested by the questionnaires. Other questionnaires contained both the expectation of parents and their evaluation of the psychotherapy. The aim of WWM is: 1. to improve the knowledge of parents about disease, 2. to correct wrong ideas on the disease, 3. to learn both parents the therapeutic rehabilitation, 4. to enable an open discussion between both parents and between parents and health personnel, 5. improving family functions by means of stimulations for free time of the family and 6. to catalyze the reproductive decision of the family if the parents are in fertile age--to inspire the planning of a new family on the basis of the method of prenatal diagnosis. CF is chronic, lethal, genetically conditioned disease. The complex therapy of CF patients enables to prolong their life often up to the adulthood. At the same time the possibility of prenatal diagnosis in CF decreases the risk of birth of another affected child in the family.(ABSTRACT TRUNCATED AT 250 WORDS)

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