Jakość życia rodzin z dzieckiem z centralnymi zaburzeniami przetwarzania słuchowego

Introduction: According to the Family Centered Approach (FCA), the family plays a leading role in supporting a child’s development, rehabilitation, and treatment. A family’s quality of life becomes an interdisciplinary diagnostic target as well as the aim of the intervention. So far, there have been no studies on the quality of life of families with children with central auditory processing disorders (APD). The study investigates the problem of the quality of life of families with a child with APD, particularly in terms of specialist support and social support. This study aimed to compare the quality of life of families with a child with APD to the quality of life of families with a child with different impairments. Adres autora: Joanna Kobosko, Zakład Audiologii Eksperymentalnej, Instytut Fizjologii i Patologii Słuchu, ul. Mochnackiego 10, 02-042, Warszawa, e-mail: j.kobosko@ifps.org.pl 26 Prace badawcze Now Audiofonol, 2021; 10(1): 26–39 DOI: 10.17431/10.1.3 CC BY-NC-ND 3.0 PL, © autorzy Wkład autorów: A Projekt badania B Gromadzenie danych C Analiza danych D Interpretacja danych E Przygotowanie pracy F Przegląd literatury G Gromadzenie funduszy Material and methods: The study involved 38 families with children with ADP aged on average 9.8 years. Parents filled in the Family Quality of Life Survey-2006 (FQOLS-2006). FQOLS-2006 assesses the quality of life of a family in several aspects: Health of the family, Financial well-being, Family relationships, Support from others, Support from disability-related services, Influence of values, Careers and preparing for careers, Leisure and recreation, Community interactions. Results: The results obtained in this study show higher, on the level of statistical trend, quality of life of families with children with APD compared to families of children with different impairments (excluding deafness). It was similar to the quality of life of families with small deaf children. Studied families with APD have scored the highest quality of life in the domains Family relationships, Health of the family, and Careers and preparing for careers. The lowest scores in the quality of life were in the domains Support from disability-related services, Support from others, and Community interactions. Among the specialist services used by families of children with APD dominates medical care provided by physicians of different specialties (54%), including psychiatrist (20%), then speech and language therapy (47%), psychological therapy including psychological counseling and psychotherapy for parents/families (44%). Conclusions: We can infer that the present offer of services for children with APD and their families is insufficient in terms of their needs. The FCA creates a chance to change the current situation of families with children with APD in this regard.