聋儿母亲人工耳蜗植入阶段的体会

A. V. Budantsov, A. Molostova
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引用次数: 0

摘要

我们介绍了对人工耳蜗植入各阶段母亲经历的定性研究结果。这项研究涵盖了从怀疑听力障碍到持续康复的所有阶段。在每个阶段,我们都强调了经验的主要特点和阻碍或促进这一进程的因素。阻碍这一进程的因素包括不正确的诊断、担心儿童的健康因手术而恶化、缺乏合格的康复监督以及在康复期间不切实际的期望。促进康复过程的因素包括正确的诊断、家庭的情感支持、适当的康复、长期康复期间的成功等。结果表明,经历人工耳蜗植入的所有阶段是一个关键的生活状况,需要母亲改变自己的价值观和解释。我们发现,孩子接受人工耳蜗植入的父母受到严重的创伤,这种创伤尤其与诊断、建立和康复阶段有关,后者与对这一渐进过程的积极结果的期望有关。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experience of Stages of Cochlear Implantation by Mothers of Deaf Children
We present the results of qualitative research on mothers’ experiences of stages of cochlear implantation. The research covers all stages from suspicion on a hearing disorder to sustainable results of rehabilitation. On each stage, we have highlighted key features of the experience and factors hampering or facilitating the process. Factors hampering the process include improper diagnosis presentation, fears of the child’s health deteriorating as a result of surgery, lack of qualified rehabilitation supervision, and unrealistic expectations during the rehabilitation. Factors facilitating the process include proper diagnosis presentation, emotional support within the family, adequate rehabilitation, success during lengthy rehabilitation, etc. The results show that living through all the stages of cochlear implantation is a critical life situation that requires mothers to change their values and interpretations. We revealed that parents whose children go through cochlear implantation are highly traumatized, the trauma is especially related to the stages of diagnosis establishment and rehabilitation, the latter of which is linked with expectations of positive results of this gradual process.
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