评估巴基斯坦医生对生物银行的知识、关注和支持,以及他们的捐赠意愿

M. Ahsan, Zahwa Arshad Rana, Muazzam Ali, Kainat Anwer
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引用次数: 5

摘要

生物标本的收集和储存以及生物库数据存在许多伦理问题。利益相关者对这些伦理问题的看法至关重要,因为它们可能有助于建立生物银行的伦理标准。医生是关键的利益相关者,因为他们可能会联系潜在的参与者并成为生物银行的用户。这项研究的目的是评估巴基斯坦医生对生物银行和捐赠意愿的看法和知识。进行了一项横断面在线调查,以调查巴基斯坦医生对生物银行的态度和看法。在2012.1年1月至4月期间,473名医生完成了问卷调查。参加者对生物银行有足够的认识。其中,74.2人表示他们听说过“人类基因组计划”这个词,而72.5%的人表示他们熟悉“生物银行”这个词。61.5%的参与者表示愿意捐赠生物标本。婚姻状况(0.001)、教职员工(0.001)、参与研究(0.038)、近年来的血液和组织检测(0.420)与捐赠意愿有显著关系。而一般健康状况、近期住院、遗传性疾病家族史、慢性病发病率和性别与捐献意愿没有统计学上的显著关联。虽然65.8%的人同意生物银行可以与外国研究团体交换生物样本,但只有49.5%的人同意与制药公司合作。尽管超过一半的巴基斯坦医生听说过生物银行,但生物银行在巴基斯坦的存在是受到限制的。他们担心市场营销、广泛同意和保密问题。利益相关者之间的知识和意识差距很大,这应该包括一些教育举措。社区就营销问题的讨论和研究成果的回报应该开始达成一致。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Assessment of Knowledge, Concerns and Support of Physicians towards Bio banks in Pakistan, and their Willingness to Donate
Bio specimen collection and storage and bio bank data have numerous ethical issues. Stakeholders' views on these ethical problems are essential because they may assist establish ethical standards for bio banking. Physicians are key stakeholders because they may contact prospective participants and become bio bank users. The aim of this research is to assess Pakistani doctors' views and knowledge regarding bio banking and willingness to donate. A cross-sectional online survey was conducted to poll Pakistani physicians’ attitudes and views regarding bio banks. Between January and April 2021.473 doctors completed the questionnaire. Participants had sufficient knowledge of bio banking. Of those, 74.2 stated that they had heard of the term "Human Genome Project," while 72.5% revealed that they were familiar with the term "bio banking." 61.5% of the participants showed their willingness to donate bio specimens. Marital status (0.001), faculty (0.001), involvement in research (0.038), blood and tissue testing in recent years (0.420) and demonstrated a significant relationship with willingness to donate. While general health status, recent hospitalization, family history of inherited diseases, incidence of chronic disease, and gender had no statistically significant associations with willingness to donate. Although65.8% agreed that bio banks should be able to exchange bio specimens with foreign research groups and only 49.5% agreed on collaboration with pharmaceutical companies. Although more than half of Pakistani doctors heard of bio banking, the presence of bio banks in Pakistan was restricted. They were concerned about marketing, widespread consent and confidentiality. There is a great gap of knowledge and awareness among stakeholders that should encompass several educational initiatives. Community conversations on the problems of marketing and the return of research findings should begin to achieve an agreement.
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