【摘要】A16:隐形男性:有色人种男性健康差异研究

Antonio Delesline, Sanford E. Jeames
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New Methodologies Needed: Clinical trials continue to contain disproportionate representation of African American participants, and yet the gaps that exist within mortality rates and survivorship remain lower among African American participants. The health care/cancer research arena reports outcomes that are satisfactorily accepted as reasonable measures of cancer strategies and outcomes. The significant question is whether these outcomes measures are valid in their findings due to inadequate representation of some groups who are identified as most vulnerable from nonsatisfactory cancer outcomes. Summary: The development of programs targeted toward under-represented populations and evaluation of communications strategies to assess the effectiveness of such programs to improve health outcomes is essential to diminish disparities. The purpose of this report is to evaluate the effectiveness of a community education program and initiative to highlight health disparities among high-risk populations. The Men of Color Health Awareness (MOCHA) initiative has been in existence since 2010 in Springfield, Massachusetts; since its inception it has reached almost 1,000 men of color in educational settings, and some 400 men have participated in its exercise and empowerment programs. MOCHA has been a key player in providing health information and interventions to men of color. Activities include hosting a prostate cancer symposium, recruitment for free PSA screenings, digital story-telling documentation, ongoing participation in community activities, and focusing on domestic violence. MOCHA plays a key role with academic institutions and health organizations in gathering information about health disparities that exist among men of color. Conclusions: A utilization of community-based programs that focus on minority populations can represent an effective strategy and approach to communicate with special populations--particularly as it relates to clinical trials education, recruitment, and accrual. Community-based organizations and faith-based institutions that contain men of color in key leadership roles and positions build trust within the community and may improve accrual and retention in clinical trials research. MOCHA has a Program Coordinator and Outreach Coordinator in key positions and decision-making processes. Men of color remain critical players to include in any outreach approaches. Minority groups will attend educational programs and respond with actions if encouraged by representatives who resemble their population. African Americans will support programs with research focuses and find information beneficial to their overall health. 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引用次数: 0

摘要

目的:21世纪为癌症研究人员带来了无数的新发现,在这项研究中,有色人种的男性仍然很少。在这些讨论中,有色人种似乎是隐形的,即使其他人群的存活率和治疗范围扩大,健康差距也在扩大。对精准医疗的新关注更加强调扩展目前正在讨论和研究的研究理念。新方案的重点是免疫治疗和遗传生物标志物的使用,这改变了癌症研究,因为它能够为癌细胞的发展创造创新的细胞模型。需要新的方法:临床试验仍然包含非裔美国人参与者的不成比例的代表性,但在非裔美国参与者中,死亡率和存活率之间存在的差距仍然较低。卫生保健/癌症研究领域报告的结果被满意地接受为癌症策略和结果的合理衡量标准。重要的问题是,由于一些被认为最容易受到不令人满意的癌症结果影响的群体的代表性不足,这些结果测量在他们的发现中是否有效。摘要:针对代表性不足的人群制定方案,并评估沟通战略,以评估这些方案改善健康结果的有效性,对于缩小差距至关重要。本报告的目的是评估社区教育方案和倡议的有效性,以突出高危人群之间的健康差距。有色人种健康意识(MOCHA)倡议自2010年以来一直存在于马萨诸塞州的斯普林菲尔德;自成立以来,已有近1000名教育机构的有色人种男性参与其中,约400名男性参加了该组织的锻炼和赋权项目。在向有色人种提供健康信息和干预措施方面,MOCHA一直发挥着关键作用。活动包括举办前列腺癌研讨会、招募免费PSA筛查人员、数字故事讲述文档、持续参与社区活动以及关注家庭暴力。MOCHA在与学术机构和卫生组织一起收集有关有色人种男性健康差异的信息方面发挥着关键作用。结论:利用以社区为基础的项目,重点关注少数群体,可以代表一种有效的策略和方法,与特殊人群进行沟通,特别是在临床试验教育、招募和累积方面。以社区为基础的组织和以信仰为基础的机构在关键的领导角色和职位上包含有色人种,在社区内建立信任,并可能提高临床试验研究的累积和保留。MOCHA在关键职位和决策过程中设有项目协调员和外联协调员。有色人种仍然是任何拓展途径中重要的参与者。少数群体将参加教育项目,并在与他们人口相似的代表的鼓励下采取行动。非裔美国人将支持以研究为重点的项目,并找到有利于他们整体健康的信息。以社区为基础的研究是可能的,并包括现实世界的经验。引文格式:Antonio Delesline, Sanford Earl james。看不见的男人:有色人种健康差异研究[摘要]。见:第十届AACR会议论文集:种族/少数民族和医疗服务不足人群的癌症健康差异科学;2017年9月25-28日;亚特兰大,乔治亚州。费城(PA): AACR;癌症流行病学杂志,2018;27(7增刊):摘要nr A16。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Abstract A16: Invisible men: Men of color in health disparities research
Purpose: As the 21st century has brought a myriad of newfound discoveries for cancer researchers, the inclusion of men of color in this research remains minimal. It is as if men of color are invisible in these discussions and gaps in health disparities widen even as survivorship and treatments expand for other populations. The new focus on precision medicine has created stronger emphasis on expanding the research ideas currently being discussed and examined. The new protocol focus for immunotherapy and use of genetic biomarkers has transformed cancer research because of its ability to create innovative cellular models for cancer cell development. New Methodologies Needed: Clinical trials continue to contain disproportionate representation of African American participants, and yet the gaps that exist within mortality rates and survivorship remain lower among African American participants. The health care/cancer research arena reports outcomes that are satisfactorily accepted as reasonable measures of cancer strategies and outcomes. The significant question is whether these outcomes measures are valid in their findings due to inadequate representation of some groups who are identified as most vulnerable from nonsatisfactory cancer outcomes. Summary: The development of programs targeted toward under-represented populations and evaluation of communications strategies to assess the effectiveness of such programs to improve health outcomes is essential to diminish disparities. The purpose of this report is to evaluate the effectiveness of a community education program and initiative to highlight health disparities among high-risk populations. The Men of Color Health Awareness (MOCHA) initiative has been in existence since 2010 in Springfield, Massachusetts; since its inception it has reached almost 1,000 men of color in educational settings, and some 400 men have participated in its exercise and empowerment programs. MOCHA has been a key player in providing health information and interventions to men of color. Activities include hosting a prostate cancer symposium, recruitment for free PSA screenings, digital story-telling documentation, ongoing participation in community activities, and focusing on domestic violence. MOCHA plays a key role with academic institutions and health organizations in gathering information about health disparities that exist among men of color. Conclusions: A utilization of community-based programs that focus on minority populations can represent an effective strategy and approach to communicate with special populations--particularly as it relates to clinical trials education, recruitment, and accrual. Community-based organizations and faith-based institutions that contain men of color in key leadership roles and positions build trust within the community and may improve accrual and retention in clinical trials research. MOCHA has a Program Coordinator and Outreach Coordinator in key positions and decision-making processes. Men of color remain critical players to include in any outreach approaches. Minority groups will attend educational programs and respond with actions if encouraged by representatives who resemble their population. African Americans will support programs with research focuses and find information beneficial to their overall health. Community-based research is possible and inclusive of real-world experiences. Citation Format: Antonio Delesline, Sanford Earl Jeames. Invisible men: Men of color in health disparities research [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr A16.
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