晚期癌症成人家庭的姑息治疗需求。

IF 1.2 4区 医学 Q3 NURSING
Carolina Rojas-Garcia, Lina María Vargas-Escobar, Mónica Giraldo-Castro
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引用次数: 0

摘要

绝症的诊断和治疗会对患者及其家属,以及他们的功能和日常生活产生重大影响。本研究旨在了解一组有成年癌症患者接受姑息治疗的家庭的姑息治疗需求。采用定性方法进行内容分析。在2022年3月至4月期间,在哥伦比亚的Cundinamarca与家庭成员进行了14次半结构化访谈。通过使用NVivo对新出现的主题进行编码和分类,对信息进行分析。出现了三个主要类别:诊断结果令人震惊、家庭对疾病的应对以及家庭对姑息治疗的需求。确定家庭可用的资源来照顾晚期癌症的亲属,可以促进姑息治疗小组的工作。有必要防止家庭放弃照顾,这可能是由于各种原因造成的疲惫。在姑息治疗中有成年癌症晚期亲属的家庭面临着重大挑战。他们的情况包括接受诊断,改变家庭惯例,处理疾病和卫生保健系统,以及应对产生不同需求的环境。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Palliative Care Needs of Families of Adults With Advanced Cancer.

Diagnosis and treatment of a terminal illness can significantly impact patients and their families, as well as their functionality and daily routines. This study aimed to understand the palliative care needs of a group of families with an adult relative with advanced cancer receiving palliative care. A qualitative approach was used to conduct a content analysis. Fourteen semistructured interviews were carried out with family members in Cundinamarca (Colombia) between March and April 2022. The information was analyzed by coding and categorizing the emerging themes using NVivo. Three main categories emerged: the diagnosis' harsh surprise, the family's coping with the disease, and the palliative care needs of families. Identifying the resources available to families to care for relatives with advanced cancer can facilitate the work of palliative care teams. It is necessary to prevent the family from giving up on caring, which can result from exhaustion due to various causes. Families who have an adult relative with advanced cancer in palliative care face significant challenges. Their situation involves accepting the diagnosis, changing family routines, dealing with the disease and the health care system, and coping with circumstances that create needs of different kinds.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
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