死得'好':临终护理师的工作、护理和支持。

Omega Pub Date : 2025-06-01 Epub Date: 2022-12-12 DOI:10.1177/00302228221145798
Amy Dellinger Page, Jonelle H Husain, Ashley M Kvanvig
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引用次数: 0

摘要

生命末期陪护师(EOLDs)是一个不断增长的护理服务提供者群体,他们关注临终者的意愿,以便在临终诊断、临终过程和死后营造一个舒适、安宁和支持的环境。本研究的目的是记录 EOLDs 在临终过程中对临终者及其亲人所投入的时间,以及他们在家庭动态中为提高对死亡的接受度所做的努力。研究采用混合方法收集 EOLDs 的数据,包括对 618 名受访者进行定量调查,以及随后对 39 名参与者进行定性访谈。结果表明,与临终者及其亲人在一起的时间差别很大,通常取决于 EOLD 何时签约服务。本文讨论了阻碍和导致人们接受死亡的因素,以及 EOLDs 在处理家庭动态关系中的作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.

End-of-life doulas (EOLDs) are a growing population of care providers who focus on the wishes of the dying person in order to cultivate an environment of comfort, peace, and support from the point of terminal diagnosis, during the dying process, and following death. The purpose of this study was to document the time commitment of EOLDs to dying persons and their loved ones during the dying process, as well as their experiences navigating family dynamics working towards increased acceptance of death. A mixed-methods approach was utilized to gather data on EOLDs, consisting of a quantitative survey with 618 respondents and subsequent qualitative interviews conducted with 39 participants. Results indicated that the amount of time spent with dying persons and their loved ones varies widely and often depends on when the EOLD is contracted regarding services. Factors that impede and lead to great acceptance of death are discussed as well as the role of EOLDs in navigating family dynamics.

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