大疱性表皮松解症儿童口腔健康相关生活质量感知的定量和定性研究。

IF 2.2 Q2 DENTISTRY, ORAL SURGERY & MEDICINE

JDR Clinical & Translational Research Pub Date : 2023-10-01 Epub Date: 2022-08-22 DOI:10.1177/23800844221118362

M Marty, C Chiaverini, C Milon, L Costa-Mendes, P Kémoun, J Mazereeuw-Hautier, C Joseph

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引用次数: 1

摘要

知识转移声明：这项研究的结果证实了患者在口腔领域所经历的困难。他们还表明，患者能够适应，他们的需求超出了功能康复。这项工作应鼓励牙科医生参与疾病的全面管理，包括定期检查、预防性牙科措施和口腔卫生教育。因此，不仅需要牙科和皮肤科团队之间，还需要与父母和护理人员进行更有效的沟通。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Perception of Oral Health-Related Quality of Life in Children with Epidermolysis Bullosa: A Quantitative and Qualitative Study.

Knowledge transfer statement: The results of this study confirm the difficulties experienced by patients in the oral sphere. They also show that patients are able to adapt and that their demands go beyond functional rehabilitation. This work should encourage dental practitioners to be part of the overall management of the disease, involving regular checkups, preventive dental measures, and oral hygiene education. Therefore, more effective communication is required, not only between the dental and dermatological teams but also with the parents and caregivers.

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来源期刊

JDR Clinical & Translational Research DENTISTRY, ORAL SURGERY & MEDICINE-

CiteScore

6.20

自引率

6.70%

发文量

期刊介绍： JDR Clinical & Translational Research seeks to publish the highest quality research articles on clinical and translational research including all of the dental specialties and implantology. Examples include behavioral sciences, cariology, oral & pharyngeal cancer, disease diagnostics, evidence based health care delivery, human genetics, health services research, periodontal diseases, oral medicine, radiology, and pathology. The JDR Clinical & Translational Research expands on its research content by including high-impact health care and global oral health policy statements and systematic reviews of clinical concepts affecting clinical practice. Unique to the JDR Clinical & Translational Research are advances in clinical and translational medicine articles created to focus on research with an immediate potential to affect clinical therapy outcomes.