针对嗜酸性粒细胞食管炎儿童的 Cellie 应对工具包:可行性、可接受性和初步结果。

IF 1.3 4区 医学 Q3 NURSING
Journal of Child Health Care Pub Date : 2023-09-01 Epub Date: 2022-01-03 DOI:10.1177/13674935211064126
Alain J Benitez, Ashley McGar, Kristen Kohser, Troy Gibbons, Amanda Muir, Maria Mascarenhas, Carmen Rossi, Francesca Dogias, Anneliese Golden, Nancy Kassam-Adams, Meghan L Marsac
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引用次数: 0

摘要

嗜酸性粒细胞食管炎(EoE)患儿面临着持续的治疗,这可能会影响他们的健康。目前还没有循证资源可供患者家庭独立使用,以应对与嗜酸性粒细胞食管炎相关的压力。本研究旨在考察新开发的 "Cellie 埃博拉儿童应对套件 "干预措施的可接受性、可行性和初步结果。40名儿童-照顾者二人组完成了基线评估(T1)并开始接受干预;30名(75%)儿童参与者和33名(82.5%)照顾者接受了随访(T2)。在完成 T2 评估的人中,大多数人表示干预很容易使用(>90%),并会向其他人推荐该干预(>90%)。干预是可行的:>超过 70% 的人使用了该工具包,大多数人表示他们会再次使用(超过 75%)。超过一半的家庭表示学到了新的信息和/或应对策略。在比较第一阶段和第二阶段的应对方法和与健康相关的生活质量时,没有发现有统计学意义的变化。这些研究结果表明,"Cellie儿童咽喉炎应对工具包 "是一项很有前景的干预措施,因为它被广泛接受、切实可行,并帮助许多家庭学会了如何应对咽喉炎挑战的新策略。未来的研究应探讨如何加强干预措施,以取得更长期的目标成果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes.

Children with eosinophilic esophagitis (EoE) are faced with ongoing treatments that can impact their wellbeing. There are no evidence-based resources that families can implement independently to cope with EoE-related stressors. This study aimed to examine acceptability, feasibility, and preliminary outcomes of the newly developed Cellie Coping Kit for Children with EoE intervention. Forty child-caregiver dyads completed a baseline assessment (T1) and initiated the intervention; 30 (75%) child participants and 33 (82.5%) caregivers were retained to follow-up (T2). Of those who completed the T2 assessment, most reported that the intervention was easy to use (>90%) and would recommend the intervention to others (>90%). The intervention was feasible: >70% used the kit, and most indicated they would use it again (>75%). More than half of families reported learning new information and/or coping strategies. No statistically significant changes were identified in comparing T1 and T2 coping and health-related quality of life. These findings suggest that the Cellie Coping Kit for Children with EoE is a promising intervention in that it was well accepted, feasible, and helped many families learn novel strategies on how to manage EoE challenges. Future research should examine how to strengthen the intervention to achieve longer-term targeted outcomes.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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