"我是一个人":对西非利比里亚以护士为主导的社区姑息关怀项目的过程评估。

IF 1.2 4区 医学 Q3 NURSING
Joseph Lusaka, Julius D N Kpoeh, Jacqueline P Crowell, Martha Sekey Gowa, Dehcontee M Hardy, Viola Karanja, William E Rosa
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引用次数: 0

摘要

利比里亚是西非一个战后、埃博拉疫情后的低收入国家,姑息关怀服务极少甚至没有。2017 年,"健康伙伴 "与利比里亚卫生部合作,在马里兰州东南部的 JJ Dossen 纪念医院投资建立了一支以护士为主导、以社区为基础的姑息关怀团队。从 2017 年到 2022 年,这个由 9 名成员组成的团队(8 名护士、1 名医生助理)已收治了 142 名患者。这是一项定性过程评估,旨在了解癌症患者的经历、观点和态度,为今后姑息关怀项目的改进和发展提供参考。采用探索性设计,使用半结构化指南对 n = 8 名参与者进行了访谈。样本的平均年龄为 48 岁,访谈时姑息关怀诊所的平均注册时间为 22.5 周。跨学科编码小组采用应用主题文本分析方法,确定了 5 个主题:病史和疾病进展、后续门诊服务、心理困扰及其来源、社会支持以及精神和文化信仰。研究的意义强调,需要加强社区参与、发展该地区临床同事的初级姑息关怀能力,以及地方和国家决策者的支持,优先扩大姑息关怀服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"I Am a Human": A Process Evaluation of a Nurse-Led Community-Based, Palliative Care Program in Liberia, West Africa.

Liberia is a postwar, post-Ebola, and low-income nation in West Africa with minimal to no palliative care access. In 2017, Partners In Health in collaboration with the Liberian Ministry of Health invested in the development of a nurse-led, community-based palliative care team in southeastern Maryland County at JJ Dossen Memorial Hospital. Between 2017 and 2022, the 9-member team (8 nurses, 1 physician assistant) has enrolled 142 patients under their care. This is a qualitative process evaluation eliciting the experiences, perspectives, and attitudes of patients with cancer to inform future palliative care program delivery improvement and development. Using an exploratory design, n = 8 participants were interviewed using a semi-structured guide. The sample had a mean age of 48 years with an average palliative care clinic enrollment period of 22.5 weeks at the time of interview. The interdisciplinary coding team used an applied thematic text analysis approach and identified 5 themes: history and disease progression, follow-up clinic services, psychological distress and its sources, social support, and spiritual and cultural beliefs. Implications emphasize the need for increased community engagement, primary palliative care capacity development of clinical colleagues in the region, and the support of local and national decision-makers to prioritize palliative care service expansion.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
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