The Parliamentary Inquiry into Mitochondrial Donation Law Reform (Maeve's Law) Bill 2021 in Australia: A Qualitative Analysis.

IF 1.8 3区 哲学 Q2 ETHICS
Journal of Bioethical Inquiry Pub Date : 2024-03-01 Epub Date: 2023-08-02 DOI:10.1007/s11673-023-10257-4
Jemima W Allen, Christopher Gyngell, Julian J Koplin, Danya F Vears
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Abstract

Recently, Australia became the second jurisdiction worldwide to legalize the use of mitochondrial donation technology. The Mitochondrial Donation Law Reform (Maeve's Law) Bill 2021 allows individuals with a family history of mitochondrial disease to access assisted reproductive techniques that prevent the inheritance of mitochondrial disease. Using inductive content analysis, we assessed submissions sent to the Senate Committee as part of a programme of scientific inquiry and public consultation that informed drafting of the Bill. These submissions discussed a range of bioethical and legal considerations of central importance to the political debate. Significantly, submissions from those with a first-hand experience of mitochondrial disease, including clinicians and those with a family history of mitochondrial disease, were in strong support of this legislation. Those in support of the Bill commended the two-staged approach and rigorous licencing requirements as part of the Bill's implementation strategy. Submissions which outlined arguments against the legislation either opposed the use of these techniques in general or opposed aspects of the implementation strategy in Australia. These findings offer a window into the ethical arguments and perspectives that matter most to those Australians who took part in the Senate inquiry into mitochondrial donation. The insights garnered from these submissions may be used to help refine policy and guidelines as the field progresses.

Abstract Image

澳大利亚《2021 年线粒体捐赠法律改革(梅芙法)法案》议会调查:定性分析。
最近,澳大利亚成为全球第二个将线粒体捐赠技术合法化的国家。2021年线粒体捐献法律改革(梅芙法)法案》允许有线粒体病家族史的个人使用辅助生殖技术,以防止线粒体病的遗传。通过归纳内容分析,我们对提交给参议院委员会的意见书进行了评估,这些意见书是科学调查和公众咨询计划的一部分,为法案的起草提供了依据。这些意见书讨论了一系列对政治辩论至关重要的生物伦理和法律问题。值得注意的是,那些亲身经历过线粒体疾病的人,包括临床医生和有线粒体疾病家族史的人,在提交的意见书中大力支持这项立法。支持该法案的人赞扬了作为法案实施战略一部分的两阶段方法和严格的许可要求。反对立法的意见要么反对使用这些技术,要么反对澳大利亚实施战略的某些方面。这些研究结果为参与参议院线粒体捐赠调查的澳大利亚人了解最重要的伦理论点和观点提供了一个窗口。随着该领域的发展,从这些意见书中获得的见解可用于帮助完善政策和指导方针。
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来源期刊
Journal of Bioethical Inquiry
Journal of Bioethical Inquiry 医学-医学:伦理
CiteScore
5.20
自引率
8.30%
发文量
67
审稿时长
>12 weeks
期刊介绍: The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies. The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following: -philosophy- bioethics- economics- social theory- law- public health and epidemiology- anthropology- psychology- feminism- gay and lesbian studies- linguistics and discourse analysis- cultural studies- disability studies- history- literature and literary studies- environmental sciences- theology and religious studies
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