Maria Bergström, Åsa Larsson Ranada, Annette Sverker, Ingrid Thyberg, Mathilda Björk
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引用次数: 0
Abstract
Background: Support from significant others is important for participation in everyday life for persons with rheumatoid arthritis (RA). Meanwhile, significant others also experience limitations.
Aims: To explore how support is expressed by persons with RA and significant others, and how support relates to participation in everyday life of persons with RA.
Material and methods: Sixteen persons with RA and their significant others participated in individual semi-structured interviews. The material was analyzed using dyadic analysis.
Results: Persons with RA and significant others reported that RA and support had become natural parts of everyday life, especially emotional support. The reciprocal dynamics of support were also expressed as imperative. Also, support from people outside of the dyads and well-functioning communication facilitated everyday life.
Conclusions: Significant others and the support they give are prominent factors and facilitators in everyday life of persons with RA. Concurrently, the support persons with RA provide is important, along with support from outside of the dyads.
Significance: The results indicate that the interaction between persons with RA and the social environment is central to gain insight into how support should be provided for optimal participation in everyday life. Significant others can preferably be more involved in the rehabilitation process.
背景:对于类风湿性关节炎(RA)患者而言,重要他人的支持对其参与日常生活非常重要。目的:探讨类风湿关节炎患者和其重要他人如何表达支持,以及支持与类风湿关节炎患者参与日常生活的关系:16 名 RA 患者及其重要他人参加了个人半结构式访谈。材料:16 名 RA 患者及其重要他人参加了个人半结构式访谈,访谈材料采用二元分析法进行分析:结果:RA 患者及其重要他人表示,RA 和支持已成为日常生活的自然组成部分,尤其是情感支持。支持的互惠动力也被认为是必须的。此外,来自二人组以外的人的支持和良好的沟通也为日常生活提供了便利:结论:重要他人及其给予的支持是 RA 患者日常生活中的重要因素和促进因素。结论:重要他人及其给予的支持是 RA 患者日常生活中的重要因素和促进因素,同时,RA 患者提供的支持以及来自二人组以外的支持也很重要:研究结果表明,RA 患者与社会环境之间的互动对深入了解如何提供支持以优化日常生活至关重要。重要他人最好能更多地参与康复过程。
期刊介绍:
The Scandinavian Journal of Occupational Therapy is an internationally well-recognized journal that aims to provide a forum for occupational therapy research worldwide and especially the Nordic countries.
Scandinavian Journal of Occupational Therapy welcomes: theoretical frameworks, original research reports emanating from quantitative, qualitative and mixed methods studies, literature reviews, case studies, presentation and evaluation of instruments, evaluation of interventions, learning and teaching in OT, letters to the editor.