Cocreating Meaning Through Expressive Writing and Reading for Cancer Caregivers.

IF 1.3 4区医学 Q4 HEALTH CARE SCIENCES & SERVICES

Journal of Palliative Care Pub Date : 2023-07-01 DOI:10.1177/0825859719871538

Yvonne W Leung, Marta M Maslej, Clara Ho, Shima Razavi, Paul Uy, Mehr-Afarin Hosseini, Jonathan Avery, Gary Rodin, Allan Peterkin

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引用次数: 7

Abstract

Purpose: Caregivers of patients with cancer cope with socioemotional challenges, which can adversely affect their well-being. We developed an intervention, expressive writing and reading (EWR), to promote emotional processing and social connectedness among caregivers. In a single-arm pilot study, we assessed its feasibility and perceived usefulness.

Methods: Caregivers participated in weekly 1.5-hour EWR workshops offered over 20 weeks. After 4 sessions, they completed semistructured interviews, which were analyzed using qualitative descriptive analysis.

Findings: Of 65 caregivers approached, 25 were eligible, 18 consented, and 9 (50%) caregivers completed at least 4 workshops and the interview. Their responses revealed 3 themes: "inner processing," "interpersonal learning," and "enhanced processing and preparedness." Perceived benefits of EWR included emotional and cognitive processing (individual and collaborative), learning from the emotions and experiences of other caregivers, and preparing for upcoming challenges.

Conclusions: Expressive writing and reading can be a safe and cost-effective supportive intervention for caregivers of patients with cancer.

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癌症护理人员通过表达性写作和阅读共同创造意义。

目的:癌症患者的照顾者应对社会情感挑战，这可能会对他们的健康产生不利影响。我们开发了一种干预，表达性写作和阅读(EWR)，以促进照顾者之间的情绪处理和社会联系。在一项单臂先导研究中，我们评估了其可行性和感知有用性。方法:护理人员参加每周1.5小时的EWR工作坊，为期20周。4个疗程后，他们完成了半结构化访谈，使用定性描述性分析对访谈进行分析。结果:在接触的65名护理人员中，25名符合条件，18名同意，9名(50%)护理人员完成了至少4次研讨会和访谈。他们的回答揭示了3个主题:“内部处理”、“人际学习”和“增强处理和准备”。感知到EWR的好处包括情绪和认知处理(个人和协作)，从其他照顾者的情绪和经验中学习，并为即将到来的挑战做好准备。结论:表达性写作和阅读对癌症患者的护理人员来说是一种安全、经济的支持性干预。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Palliative Care 医学-卫生保健

CiteScore

3.20

自引率

5.90%

发文量

审稿时长

>12 weeks

期刊介绍： The Journal of Palliative Care is a quarterly, peer-reviewed, international and interdisciplinary forum for practical, critical thought on palliative care and palliative medicine. JPC publishes high-quality original research, opinion papers/commentaries, narrative and humanities works, case reports/case series, and reports on international activities and comparative palliative care.