A qualitative study with Italian patients exploring the spiritual dimension during a chronic disease.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-29 DOI:10.1177/17423953231178236

Silvia Tanzi, Giovanna Artioli, Ludovica De Panfilis, Luca Ghirotto, Elisa Rabitti, Simona Sacchi

{"title":"A qualitative study with Italian patients exploring the spiritual dimension during a chronic disease.","authors":"Silvia Tanzi, Giovanna Artioli, Ludovica De Panfilis, Luca Ghirotto, Elisa Rabitti, Simona Sacchi","doi":"10.1177/17423953231178236","DOIUrl":null,"url":null,"abstract":"Background: Spirituality is a vast dimension influenced by cultural and personal differences. Little is known about the spirituality of patients suffering from a chronic disease in Italy from palliative care hospital settings.Aim: To investigate patients' perspectives about their spirituality during their illness.Method: The research question was: 'How does living with chronic disease inform/shape the spiritual dimension of patients?'. To address it, we conducted a qualitative interview study with thematic analysis.Results: We enrolled 21 participants among patients suffering from rheumatic, haematologic, neurodegenerative and respiratory chronic diseases. Participants generally had great difficulty answering the questions researchers posed and often could not define 'spirituality'. We found different topics grouped under four main themes: definition of spirituality, internal dialogue, expression of spirituality in everyday life and take stock. Religion is not reported as an answer to spiritual suffering, even in a country that is felt religious-driven like Italy.Discussion: Patients are generally not cognizant of this dimension even living with a chronic disease; consequently, they cannot express spiritual needs because they can't recognise them. Health professionals should identify this dimension and its characteristics to recognise potential spiritual suffering.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"335-348"},"PeriodicalIF":1.8000,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Chronic Illness","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/17423953231178236","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/5/29 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}

引用次数: 0

Abstract

Background: Spirituality is a vast dimension influenced by cultural and personal differences. Little is known about the spirituality of patients suffering from a chronic disease in Italy from palliative care hospital settings.

Aim: To investigate patients' perspectives about their spirituality during their illness.

Method: The research question was: 'How does living with chronic disease inform/shape the spiritual dimension of patients?'. To address it, we conducted a qualitative interview study with thematic analysis.

Results: We enrolled 21 participants among patients suffering from rheumatic, haematologic, neurodegenerative and respiratory chronic diseases. Participants generally had great difficulty answering the questions researchers posed and often could not define 'spirituality'. We found different topics grouped under four main themes: definition of spirituality, internal dialogue, expression of spirituality in everyday life and take stock. Religion is not reported as an answer to spiritual suffering, even in a country that is felt religious-driven like Italy.

Discussion: Patients are generally not cognizant of this dimension even living with a chronic disease; consequently, they cannot express spiritual needs because they can't recognise them. Health professionals should identify this dimension and its characteristics to recognise potential spiritual suffering.

查看原文本刊更多论文

一项针对意大利病人的定性研究，探索慢性病患者的精神层面。

背景：灵性是一个受文化和个人差异影响的巨大层面。在意大利，人们对在医院接受姑息治疗的慢性病患者的精神生活知之甚少：研究问题是："慢性病患者的生活如何影响/塑造患者的精神层面？为了解决这个问题，我们开展了一项定性访谈研究，并进行了主题分析：我们在风湿病、血液病、神经退行性疾病和呼吸系统慢性疾病患者中招募了 21 名参与者。参与者通常很难回答研究人员提出的问题，而且往往无法定义 "灵性"。我们发现，不同的主题可归纳为四大主题：灵性的定义、内心对话、日常生活中灵性的表达和总结。即使在意大利这样一个以宗教为主导的国家，也没有报告称宗教是解决精神痛苦的方法：讨论：即使是患有慢性疾病的患者，一般也不会意识到这一层面；因此，他们无法表达精神需求，因为他们无法认识到这一点。医护人员应识别这一维度及其特征，以识别潜在的精神痛苦。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.