Rheumatic disease and fatigue: Participants' experiences of an activity-pacing group.

IF 1.9 4区医学 Q2 REHABILITATION

Scandinavian Journal of Occupational Therapy Pub Date : 2023-07-01 DOI:10.1080/11038128.2021.1998609

Margaret L Søvik, Ruth Else M Eide, Bjørg Rene, Margaret M Strand, Ingvill Devik, Dag Einar Liland, Ingvild Kjeken, Tina Taule

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引用次数: 3

Abstract

Background: Fatigue is a common symptom of inflammatory rheumatic disease and has a great impact on everyday life. Activity-pacing is proposed as an intervention to increase participation in meaningful activities.

Aims: To explore participants' experiences with an activity-pacing group, how participants perceived self-managing everyday life after group attendance, and their reflections on unmet needs that could enhance self-management of everyday life with fatigue.

Materials and methods: Semi-structured interviews were conducted with 10 participants who had attended an activity-pacing group. Thematic analyses were conducted.

Findings: Prior to group attendance, the participants expressed an awareness of their lack of knowledge of fatigue. Through group attendance, they increased their understanding of fatigue and their ability to apply strategies to better manage everyday life. Participants found it difficult to balance their energy use and realised that implementing activity-pacing strategies takes time. Therefore, they requested follow-up sessions with the activity-pacing group. They also desire that rheumatologists pay more attention to and acknowledge fatigue.

Conclusions and significance: Enhancing the understanding of fatigue and how to manage everyday life with fatigue, appears to be important. Group interventions led by occupational therapists and with a focus on activity-pacing may be a suitable approach. Follow-up sessions are recommended.

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风湿病和疲劳:活动起搏组参与者的经验。

背景:疲劳是炎症性风湿病的常见症状，对日常生活有很大影响。活动节奏被提议作为一种干预措施，以增加参与有意义的活动。目的:探讨参与者在活动节奏小组的经历，参与者在小组出席后如何感知自我管理日常生活，以及他们对未满足的需求的反思，这些需求可以增强日常疲劳生活的自我管理。材料与方法:对10名参加活动节奏组的参与者进行半结构化访谈。进行了专题分析。研究结果:在小组出席之前，参与者表达了他们缺乏疲劳知识的意识。通过小组参与，他们加深了对疲劳的理解，并提高了运用策略来更好地管理日常生活的能力。参与者发现很难平衡他们的能量消耗，并意识到实施活动节奏策略需要时间。因此，他们要求与活动节奏组进行后续会议。他们还希望风湿病学家更多地关注和承认疲劳。结论与意义:加强对疲劳的认识和如何处理日常生活中的疲劳，显得很重要。由职业治疗师领导的以活动节奏为重点的小组干预可能是一种合适的方法。建议进行后续会议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Scandinavian Journal of Occupational Therapy REHABILITATION-

CiteScore

3.40

自引率

15.80%

发文量

审稿时长

6-12 weeks

期刊介绍： The Scandinavian Journal of Occupational Therapy is an internationally well-recognized journal that aims to provide a forum for occupational therapy research worldwide and especially the Nordic countries. Scandinavian Journal of Occupational Therapy welcomes: theoretical frameworks, original research reports emanating from quantitative, qualitative and mixed methods studies, literature reviews, case studies, presentation and evaluation of instruments, evaluation of interventions, learning and teaching in OT, letters to the editor.