An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Chronic Illness Pub Date : 2023-06-01 Epub Date: 2022-04-25 DOI:10.1177/17423953221097076

Priya Treesa Thomas, Manjusha G Warrier, S Arun, B Bhuvaneshwari, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Prakashi Rajaram, Atchayaram Nalini

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引用次数: 0

Abstract

Objective: To develop individualised psychosocial intervention program for people with MND and their families in India.

Methods: People with MND and healthcare staff were constructively involved in co-designing the intervention program in four phases adapted from the MRC framework: 1. A detailed need assessment phase where 30 participants shared their perceptions of psychosocial needs 2. Developing the intervention module (synthesis of narrative review, identified needs); 3. Feasibility testing of the intervention program among seven participants; 4. Feedback from participants on the feasibility (acceptance, practicality adaptation). The study adopted an exploratory research design.

Results: Intervention program of nine sessions, addressing psychosocial challenges through the different stages of progression of the illness and ways to handle the challenges, specific to the low resource settings, was developed and was found to be feasible. People with MND and families who participated in the feasibility study shared the perceived benefit through feedback interviews.

Conclusion: MND has changing needs and challenges. Intervention programme was found to be feasible to be implemented among larger group to establish efficacy.

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在资源匮乏的环境中，为 MND/ALS 患者及其家人提供个性化的社会心理干预计划。

目的：为印度的 MND 患者及其家庭制定个性化的心理干预计划：为印度的 MND 患者及其家人制定个性化的心理干预计划：方法： MND患者和医护人员建设性地参与共同设计干预计划，该计划分为四个阶段，改编自 MRC 框架：1.详细的需求评估阶段，30 名参与者分享了他们对社会心理需求的看法。2.开发干预模块（综合叙述回顾、确定需求）；3.在 7 名参与者中对干预计划进行可行性测试；4.参与者对可行性的反馈（接受度、实用性调整）。研究采用探索性研究设计：研究开发了九节干预课程，针对疾病发展的不同阶段解决社会心理挑战，并针对资源匮乏的环境提供应对挑战的方法，结果表明该干预课程是可行的。参与可行性研究的 MND 患者和家属通过反馈访谈分享了他们所感受到的益处：结论：MND 的需求和挑战不断变化。结论：MND 的需求和挑战在不断变化，干预计划在更大的群体中实施以确定其有效性是可行的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.