Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization.

IF 3.4 2区 医学 Q1 DEMOGRAPHY
Laura Graham Holmes, Kristy Anderson, Greg S Sieber, Paul T Shattuck
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引用次数: 1

Abstract

Background: Sexual and reproductive health services promote the ability of people to have safe, satisfying, non-coercive sexual experiences and make informed decisions about pregnancy. Stakeholder input is needed to understand barriers or facilitators to service access for autistic people, who report unmet needs.

Methods: We recruited 18 autistic people, 15 parents, and 15 service providers in the United States to participate in an interview and two surveys. Using their input, we created a conceptual model of sexual and reproductive health service needs, access barriers, and facilitators.

Results: Stakeholders rated a variety of sexual and reproductive health services as important for autistic people, including those with intellectual disability or minimal verbal language. Stakeholders identified barriers to sexual and reproductive health service utilization including lack of service availability, lack of service providers with autism or neurodiversity training, lack of accurate information about autism and sexuality, verbal and communication differences that are not accommodated by service providers, and socio-cultural attitudes about sexuality. Stakeholders identified facilitators to service access including person-centered, trauma-informed care, service accommodations such as clear and detailed expectations, and long-enough appointments. We created a conceptual model based on the social ecological model of health to organize these utilization factors and support future research, provider, and policy action. Stakeholders provided feedback and responded favorably on the model's accuracy, utility for spurring research, practice, and policy improvements, and application to diverse groups of autistic people.

Conclusions: The model shows the many feasible ways to support equitable access to services for autistic people.

美国自闭症青年的性健康和生殖健康服务:利用的概念模型。
背景:性健康和生殖健康服务促进人们有能力获得安全、满意、非强制性的性体验,并就怀孕作出知情决定。需要利益攸关方的投入,以了解自闭症患者获得服务的障碍或促进因素,他们报告需求未得到满足。方法:我们在美国招募了18名自闭症患者、15名家长和15名服务提供者参与一次访谈和两次调查。利用他们的意见,我们创建了一个关于性健康和生殖健康服务需求、获取障碍和促进者的概念模型。结果:利益攸关方认为各种性健康和生殖健康服务对自闭症患者很重要,包括智力残疾或语言能力低下的自闭症患者。利益攸关方确定了利用性健康和生殖健康服务的障碍,包括缺乏服务、缺乏接受过自闭症或神经多样性培训的服务提供者、缺乏关于自闭症和性的准确信息、服务提供者无法适应的语言和沟通差异,以及对性的社会文化态度。利益相关者确定了服务获取的促进因素,包括以人为本、创伤知情的护理、服务便利,如明确和详细的期望,以及足够长的预约。我们建立了一个基于健康社会生态模型的概念模型来组织这些利用因素,为未来的研究、提供者和政策行动提供支持。利益相关者对模型的准确性、促进研究、实践和政策改进的效用以及对不同群体自闭症患者的应用提供了反馈和积极回应。结论:该模型显示了支持自闭症患者公平获得服务的许多可行方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
5.10
自引率
3.40%
发文量
24
期刊介绍: Perspectives on Sexual and Reproductive Health provides the latest peer-reviewed, policy-relevant research and analysis on sexual and reproductive health and rights in the United States and other developed countries. For more than four decades, Perspectives has offered unique insights into how reproductive health issues relate to one another; how they are affected by policies and programs; and their implications for individuals and societies. Published four times a year, Perspectives on Sexual and Reproductive Health includes original research, special reports and commentaries on the latest developments in the field of sexual and reproductive health, as well as staff-written summaries of recent findings in the field.
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