Autism services in low-resource areas.

IF 1.2 4区医学 Q4 CLINICAL NEUROLOGY

Neurosciences Pub Date : 2023-04-01 DOI:10.17712/nsj.2023.2.20220098

Amira T Masri, Arwa K Nasir, Aya G Irshaid, Fatima Y Irshaid, Farah K Alomari, Faisal A Khatib, Abdelkarim A Al-Qudah, Omar A Nafi, Miral A Almomani, Mahmoud A Bashtawi

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引用次数: 0

Abstract

Objectives: To explore access to intervention services for children with autism spectrum disorder (ASD) in Jordan.

Methods: We used prospective cross sectional design and survey methodology to collect information from the parents of a convenient sample of children with ASD aged 2.5-17 years and who attended pediatric neurology clinics in 3 different university affiliated hospitals in 3 geographic areas in Jordan from February to December 2018.

Results: We interviewed parents of 274 children with ASD. One hundred ninety-six (71.5%) received rehabilitation services. The average age at first session was 3.9 years. The most common services received were behavioral therapy (182; 66.4%). The average weekly hours were highest for speech and behavioral therapy; 6.25 and 6.64 respectively. Private centers for developmental disabilities were the most commonly used followed by private centers for ASD. The most common barriers were costs (138; 58%) and transportation (88; 37.5%). Most parents (198; 72.3%) prefer to receive rehabilitation in a specialized center for autism, and most did not want to receive training to train their child themselves.

Conclusion: Most children with ASD in Jordan have limited access to recommended autism services. The development of future interventions must consider the needs of those living in limited resource regions.

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资源匮乏地区的自闭症服务。

目的:探讨约旦儿童自闭症谱系障碍(ASD)干预服务的可及性。方法:采用前瞻性横断面设计和调查方法，收集2018年2月至12月在约旦3个地理区域的3所不同大学附属医院儿科神经病学诊所就诊的2.5-17岁ASD儿童家长的信息。结果:我们采访了274名ASD患儿的家长。196人(71.5%)接受康复服务。第一次治疗的平均年龄为3.9岁。最常见的服务是行为治疗(182;66.4%)。言语和行为治疗的平均每周工作时间最高;分别为6.25和6.64。私立发育障碍中心是最常用的其次是私立ASD中心。最常见的障碍是成本(138;58%)和交通(88%;37.5%)。大多数父母(198;72.3%)倾向于在专门的自闭症中心接受康复治疗，大多数人不希望接受训练来训练他们的孩子。结论:约旦大多数自闭症儿童获得推荐的自闭症服务的机会有限。未来干预措施的发展必须考虑到生活在资源有限地区的人们的需要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Neurosciences 医学-临床神经学

CiteScore

1.40

自引率

0.00%

发文量

审稿时长

4.5 months

期刊介绍： Neurosciences is an open access, peer-reviewed, quarterly publication. Authors are invited to submit for publication articles reporting original work related to the nervous system, e.g., neurology, neurophysiology, neuroradiology, neurosurgery, neurorehabilitation, neurooncology, neuropsychiatry, and neurogenetics, etc. Basic research withclear clinical implications will also be considered. Review articles of current interest and high standard are welcomed for consideration. Prospective workshould not be backdated. There are also sections for Case Reports, Brief Communication, Correspondence, and medical news items. To promote continuous education, training, and learning, we include Clinical Images and MCQ’s. Highlights of international and regional meetings of interest, and specialized supplements will also be considered. All submissions must conform to the Uniform Requirements.