Mothering Children with Visual Impairment in Ghana: an Exploration of Expectations and Challenges

IF 1.3 Q3 EDUCATION, SPECIAL
Cynthia Abekah Okwan, Maxwell Peprah Opoku, William Nketsia, Wisdom Kwadwo Mprah
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引用次数: 0

Abstract

Objectives

The quality of parenting arguably determines the quality of life that a child will live in the future. Although both mothers and fathers are expected to contribute toward raising their children, in the cultural context of sub-Saharan Africa, mothers automatically become the primary caregivers and managers of domestic affairs. In the event that there are children with disabilities in a family, the mother is expected to be the carer. While having a child with a disability places an additional burden on mothers due to the child’s unique characteristics, there is only a small body of literature on mothering children with visual impairments (VI) in the African context. In a cultural environment such as that of Ghana, it is important to understand mothering experiences.

Methods

Twenty mothers of children with VI who were at least 18 years old took part in this qualitative descriptive study. A semi-structured interview guide was developed and used to collect the data, which were then subjected to thematic analysis.

Results

Three themes were identified: opportunities for development, support services, and challenges faced by mothers. While the sample of mothers demonstrated high expectations, resilience, and a commitment toward raising their children, support services were unavailable to them.

Conclusions

While shouldering all the caregiving responsibilities, the participants remained resilient, did not appear to be stressed, and were committed to raising their children with VI.

加纳视力障碍儿童的母亲:对期望与挑战的探索
目标 父母养育子女的质量可以说决定了子女未来的生活质量。虽然母亲和父亲都应为抚养子女做出贡献,但在撒哈拉以南非洲的文化背景下,母亲自动成为主要的照顾者和家庭事务的管理者。如果家中有残疾儿童,母亲就会成为照顾者。虽然残疾儿童的特殊性给母亲带来了额外的负担,但有关非洲视障儿童母亲的文献却很少。在加纳这样的文化环境中,了解母亲的育儿经验非常重要。结果确定了三个主题:发展机遇、支持服务和母亲面临的挑战。虽然样本中的母亲们表现出了很高的期望值、坚韧不拔的精神以及抚养子女的决心,但她们却无法获得支持服务。结论在承担所有照顾责任的同时,参与者们仍然保持着坚韧不拔的精神,似乎并无压力,并致力于抚养患有 VI 的子女。
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来源期刊
Advances in Neurodevelopmental Disorders
Advances in Neurodevelopmental Disorders Social Sciences-Social Sciences (miscellaneous)
CiteScore
2.10
自引率
0.00%
发文量
72
期刊介绍: Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.
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