Spa Treatment of Children with Congenital Epidermolysis Bullosa

Abstract

Epidermolysis bullosa (EB) belongs to the group of genetically and clinically heterogeneous diseases characterized by the formation of blisters and erosions on the skin and mucous membranes, vulnerability and sensitivity of the skin to minor mechanical injury (mechanobullous disease). According to unconfirmed reports, there are 2-2.5 thousand children with congenital epidermolysis in Russia. There are no radical methods of treatment for any form of EB. All therapeutic measures are palliative, aimed primarily at preventing injuries and blisters arising on their background with the help of optimal skin care and affected areas. Since 2018, in the ‘Avangard’ Sanatorium of the Branch of ‘Children's Medical Center’ the Federal State Budgetary Institution of the Administration of the President of RF in Sochi, within the framework of cooperation with the ‘Butterfly Children’ Charity Foundation, children with congenital epidermolysis receive rehabilitation and spa treatment. Individual treatment programs and psychological assistance specially developed for children are aimed at preventing the occurrence of new rashes, regression of vesicular and erosive-ulcerative rashes, improving the quality of life of patients. During our work with such children, we have managed to achieve certain results in treatment and rehabilitation. Spa treatment of children with congenital BE is an integral part of comprehensive treatment.