The Journey Full of Emotions: Parents’ Experiences in Raising Children with Cerebral Palsy

A. Andromeda, Nurul Hartini, S. Suryanto
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引用次数: 0

Abstract

Raising a child with cerebral palsy (CP) is a formidable challenge for parents that can lead to tension and reality denial. This qualitative study aims to explore the parenting experience and the acceptance process of parents towards children with CP. This study used a qualitative design with semi-structured in-depth interviews. Three mothers and two fathers of children with CP were involved as interviewees. Data analysis was carried out using deductive thematic analysis technique. Common themes such as post-diagnosis denial; a long and emotional acceptance process; spouse's involvement in parenting; spiritual implication; the need for community support, are experienced by parents. Parental acceptance towards a child with CP is a long, complex, and emotional process. In conclusion, families that are able to achieve acceptance more easily adapting to family changes and dealing with stress. The findings of this study became an important milestone for the development of studies in the fields of family, disability, and social work. 
充满情感的旅程:父母养育脑瘫儿童的经验
抚养患有脑瘫(CP)的孩子对父母来说是一项艰巨的挑战,可能会导致紧张和否认现实。本研究采用半结构化深度访谈的定性设计,旨在探讨父母对CP儿童的养育经验和接受过程。有CP儿童的三位母亲和两位父亲作为受访者。数据分析采用演绎主题分析技术。常见的主题,如诊断后否认;漫长而情绪化的接受过程;配偶参与养育子女;精神的含义;对社区支持的需求,是由父母体验到的。父母对患有CP的孩子的接纳是一个漫长、复杂和情绪化的过程。总之,能够获得接纳的家庭更容易适应家庭的变化和处理压力。本研究结果成为家庭、残障及社会工作领域研究发展的重要里程碑。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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