Virtual Cognitive Screenings and Interviews of Patients with Neurodegenerative Conditions Associated with Alzheimer’s Disease and Parkinson’s Disease

W. Lenderking, C. Abel, E. Brookes, N. Sargalo, Dina Filipenko, Charles Smith, R. Lo
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Abstract

The current pandemic of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), commonly referred to as COVID-19, brings myriad challenges to research conducted among those more susceptible to the virus. According to the United States (US) Centers for Disease Control (CDC), eight out of ten re-ported COVID-19 deaths are among people > 65 years of age and older. Nonetheless, researchers must continue the crucial work of investigating and understanding diseases that affect the elderly. The focus of this white paper is to assess the challenges associated with research within the elderly population with neurocognitive conditions. Specifically, this paper addresses the need for the standardized administration of performance measures (e.g., neurocognitive assessments) among a dementia population while ensuring the physical safety of participants. Consideration is given to the administration of performance measures and the availability and feasibility of administering these measures remotely to a population that may have difficulty using novel technologies. In implementing remote research assessments, it is suggested that researchers fol-low a GAMMA approach by: 1) establishing clear Guidance on remote visit expectations and processes; 2) establishing Appropriate exclusionary criteria in the development of the study design; 3) providing subjects Appropriate study Materials for visual processing; 4) incorporating Multiple data sources in the overall study design (e.g., caregiver input); and 5) Acknowledging that there will be study limitations as researchers use emerging technology with this patient population, and using mitigation strategies for these limitations where possible.
阿尔茨海默病和帕金森病相关神经退行性疾病患者的虚拟认知筛查和访谈
当前的严重急性呼吸系统综合征冠状病毒2 (SARS-CoV-2)大流行,通常被称为COVID-19,给在更容易感染该病毒的人群中进行的研究带来了无数挑战。根据美国疾病控制中心(CDC)的数据,报告的10例COVID-19死亡中有8例是65岁以上的人。尽管如此,研究人员必须继续调查和了解影响老年人的疾病的关键工作。本白皮书的重点是评估与老年神经认知疾病研究相关的挑战。具体而言,本文解决了在确保参与者身体安全的同时,在痴呆症人群中对表现措施(例如,神经认知评估)进行标准化管理的需要。考虑到绩效措施的管理,以及对可能难以使用新技术的人口远程管理这些措施的可用性和可行性。在实施远程研究评估时,建议研究人员遵循GAMMA方法:1)建立明确的远程访问期望和流程指南;2)在研究设计的制定过程中建立适当的排除标准;3)为受试者提供合适的学习材料进行视觉加工;4)在整体研究设计中纳入多个数据源(例如,护理人员输入);5)承认研究人员在这一患者群体中使用新兴技术时将存在研究局限性,并在可能的情况下使用缓解这些局限性的策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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