Citizen-Person: The “Me” in the “We” in Danish Precision Medicine

IF 3.1 2区社会学 Q1 SOCIAL ISSUES

Science Technology & Human Values Pub Date : 2022-06-30 DOI:10.1177/01622439221108535

M. Svendsen, L. Navne

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引用次数: 3

Abstract

The genome has become a crucial component in precision medicine aimed at tailoring medical treatment to the individual. To the extent that social science studies of genomics have explored questions related to the individual, these studies have focused on how the governance regarding genomes facilitates individuals’ rights, choices, and responsibilities. By contrast, we approach genomic governance by investigating how enactments of the person in precision medicine actualize practices of reciprocity and belonging in a national collective. Based on document analysis and ethnographic fieldwork in Denmark, we show that genomes are treated simultaneously as digital representations of individuals, social resources for a welfare state population, and emblems of public trust. By drawing on classical and contemporary anthropological theories of personhood, we unfold how Danish precision medicine prescribes a moral continuity between person, state, and territory. We argue that Danish precision medicine revitalizes a national politics of belonging and generates socio-spatial orientations through which the “me” of the person shares origin and place with the “we” of the welfare state.

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公民-人:丹麦精准医学中“我们”中的“我”

基因组已经成为精准医学的一个关键组成部分，旨在为个体量身定制医疗方案。基因组学的社会科学研究在一定程度上探索了与个体相关的问题，这些研究集中在基因组的治理如何促进个人的权利、选择和责任。相比之下，我们通过研究精准医疗中人的行为如何实现互惠和属于国家集体的实践来接近基因组治理。基于文献分析和丹麦的民族志田野调查，我们表明基因组同时被视为个人的数字表示、福利国家人口的社会资源和公众信任的象征。通过借鉴古典和当代的人格人类学理论，我们揭示了丹麦精准医学是如何规定个人、国家和领土之间的道德连续性的。我们认为，丹麦精准医学复兴了国家政治的归属感，并产生了社会空间取向，通过这种取向，个人的“我”与福利国家的“我们”共享起源和位置。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Science Technology & Human Values SOCIAL ISSUES-

CiteScore

7.70

自引率

6.50%

发文量

期刊介绍： As scientific advances improve our lives, they also complicate how we live and react to the new technologies. More and more, human values come into conflict with scientific advancement as we deal with important issues such as nuclear power, environmental degradation and information technology. Science, Technology, & Human Values is a peer-reviewed, international, interdisciplinary journal containing research, analyses and commentary on the development and dynamics of science and technology, including their relationship to politics, society and culture.