The Autism Literary Underground

IF 0.1 0 HUMANITIES, MULTIDISCIPLINARY
J. Rose
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引用次数: 1

Abstract

Though most physicians and public health officials deny that vaccination can cause autism, many autism parents believe there is such a link, and many of them resort to alternative treatments. This article takes no position on these controversies, but it uses the methods of reception history to explain how this “underground” movement has gained traction in the face of fierce opposition from the medical establishment and the mass media. The movement belongs to a long tradition of do-it-yourself medicine, which urged patients to read medical literature and treat themselves. Large-scale surveys of vaccine-hesitant websites and parents, and an intensive study of the reading done by six autism parents, reveals that these parents read extensively and critically both refereed medical literature and Internet postings by other autism parents. They are not “antiscience,” but they are producing and consuming literature about autism and interacting with each other on social media.
自闭症地下文学
尽管大多数医生和公共卫生官员否认接种疫苗会导致自闭症,但许多自闭症家长相信两者之间存在联系,他们中的许多人求助于替代疗法。本文对这些争议没有立场,但用接受史的方法来解释这种“地下”运动是如何面对医疗机构和大众媒体的激烈反对而获得动力的。这一运动属于“自己动手”医学的悠久传统,该传统敦促患者阅读医学文献并自行治疗。对疫苗犹豫网站和父母的大规模调查,以及对六位自闭症父母的阅读进行的深入研究表明,这些父母广泛而批判性地阅读医学文献和其他自闭症父母在互联网上发表的帖子。他们不是“反科学”,但他们正在制作和消费有关自闭症的文献,并在社交媒体上相互交流。
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来源期刊
Reception-Texts Readers Audiences History
Reception-Texts Readers Audiences History HUMANITIES, MULTIDISCIPLINARY-
CiteScore
0.10
自引率
0.00%
发文量
14
期刊介绍: Reception: Texts, Readers, Audiences, History is a scholarly, peer-reviewed journal published once a year. It seeks to promote dialog and discussion among scholars engaged in theoretical and practical analyses in several related fields: reader-response criticism and pedagogy, reception study, history of reading and the book, audience and communication studies, institutional studies and histories, as well as interpretive strategies related to feminism, race and ethnicity, gender and sexuality, and postcolonial studies, focusing mainly but not exclusively on the literature, culture, and media of England and the United States.
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