Caregivers’ Accounts of School Searches for Children with Cerebral Palsy in a Developing Sub-Saharan African Context

Abstract

Objectives

Cerebral palsy (CP) is a neurological condition caused by damage to the part of the brain known as the cerebral cortex and affecting the coordination and movement of individuals. The challenges faced by caregivers raising children with CP cannot be overemphasized. However, information regarding the accessibility of education for children with CP is scant or unreported. In this study, we investigated the experiences of parents in their efforts to enroll their children with CP in schools.

Methods

Qualitative semi-structured interviews were conducted with a cohort of 40 parents with children with CP who were observed for 5 years. The interviews were transcribed and subjected to thematic analysis.

Results

The results that emerged from the thematic analysis demonstrated the difficulties faced by parents in searching for a school for their children with CP. According to the study participants, both special and regular schools were inaccessible to children with CP, due to unfriendly school environments, transportation problems, and high costs, as well as a lack of resources, qualified staff, and human resources.

Conclusions

The findings underscore the urgent need for policymakers in Ghana to consider or make provisions for the education of children with CP. Without this, children with CP and their families could be entrapped in a vicious cycle of poverty, deprivation, and dependence on others for their livelihoods.