Developing a ‘Living with Cancer’ programme in a rural and coastal setting: Experiences of collaborative and innovative co-production across an Integrated Health System

Abstract

Introduction

With projected increases in cancer prevalence, and demonstrated unmet need, there is an urgency for a collaborative approach to improving the lives of those living with cancer particularly in rural and coastal areas where cancer survivors face unique challenges. We report on an innovative ‘Living with Cancer’ (LWC) programme in the rural and coastal English county of Lincolnshire.

Methods

In 2016, the Lincolnshire LWC programme was established to develop person-centred, local support for people living with cancer, their carers and significant others in Lincolnshire. This article reports on the setup of the LWC programme, our innovative approach to delivering cancer care in a rural and coastal setting, as well as our most salient achievements.

Results

This work, developed within a policy context of tackling health inequalities and personalised approaches to care, started with stakeholder and community engagement where people described the challenges to living well after cancer and the need to focus on 8 themes further exacerbated by rurality. Recognising the limitations of conventional approaches, led to the development of a strategy underpinned by a shared set of principles and a philosophy of the importance of a transformative, whole-system, place-based, asset-based, and person-centred approaches. The strategy is now being coordinated and delivered across all cancer pathways and Lincolnshire communities. In 2022, permanent funding was secured, and our success was also demonstrated by a national Macmillan Integration Excellence award.

Discussion

The initial success of the LWC programme in Lincolnshire is a result of an explicit focus on ‘transformation’ rather than ‘improvement’, and a programme not solely situated in an acute setting, which needed a whole systems approach with a focus on person-centred support and community engagement.