Relationship Between Symptom Severity and Caregiver Burden Experienced by Parents of Adults With Autism

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

Focus on Autism and Other Developmental Disabilities Pub Date : 2020-09-11 DOI:10.1177/1088357620956927

C. Marsack-Topolewski, Alexandros Maragakis

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引用次数: 9

Abstract

This study examined the relationship between the severity of autism spectrum disorder (ASD) and caregiver burden among parents of adult children with ASD. Using a mixed-methods study, 320 parents of adults with ASD participated in the web-based survey, with 51 parents participating in follow-up interviews. The quantitative analysis was used to determine whether caregiver burden could be predicted from the severity of ASD factors (communication, behavior, and socialization) and basic and instrumental activities of daily living (BADLs and IADLs). Results indicated that caregiver burden was predicted from BADLs, IADLs, and adult child behavior. Interview themes that emerged from qualitative analyses supported quantitative findings. Behavior was the strongest predictor of caregiver burden and discussed by parents during interviews. Professionals should develop behavioral support programs for adults with ASD to continue to reinforce positive behavior and support parents who are managing their adult child’s difficult behaviors.

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自闭症成人父母症状严重程度与照顾者负担的关系

本研究调查了成年自闭症谱系障碍（ASD）儿童父母的自闭症谱系疾病严重程度与照顾者负担之间的关系。通过一项混合方法研究，320名ASD成年人的父母参与了这项基于网络的调查，51名父母参与了后续访谈。定量分析用于确定是否可以从ASD因素（沟通、行为和社会化）的严重程度以及日常生活的基本和工具性活动（BADL和IADL）来预测照顾者负担。结果表明，照顾者负担是根据BADL、IADL和成年儿童行为预测的。从定性分析中得出的访谈主题支持了定量调查结果。行为是照顾者负担的最强预测因素，父母在访谈中对此进行了讨论。专业人士应为患有自闭症谱系障碍的成年人制定行为支持计划，以继续加强积极的行为，并支持管理成年子女困难行为的父母。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Focus on Autism and Other Developmental Disabilities Multiple-

CiteScore

3.50

自引率

5.00%

发文量

期刊介绍： Focus on Autism and Other Developmental Disabilities addresses issues concerning individuals with autism and other developmental disabilities and their families. Manuscripts reflect a wide range of disciplines, including education, psychology, psychiatry, medicine, physical therapy, occupational therapy, speech/language pathology, social work, and related areas. The journal’s editorial staff seeks manuscripts from diverse philosophical and theoretical positions.