EXPERIENCES OF MOTHERS IN DEALING WITH STIGMA RELATED TO THEIR CHILDREN WITH AUTISM SPECTRUM DISORDER IN THE SAUDI CONTEXT

IF 0.8 Q3 EDUCATION & EDUCATIONAL RESEARCH

Problems of Education in the 21st Century Pub Date : 2022-12-25 DOI:10.33225/pec/22.80.851

M. F. Sulaimani, Najwa Bakr Mursi

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Abstract

It remains unknown to what extent mothers of children with Autism Spectrum Disorder (ASD) are stigmatized. Children with ASD require special care to increase their attention and master the necessary motor and behavioural skills. In most society, particularly Middle East and Africa, mothers are largely the care providers for children while their partners concentrate on financial provision. Therefore, mothers experience a lot of challenges and stigma from some partners, family members, and the society. This qualitative phenomenological research examined the experiences of 15 mothers regarding the stigma associated with their children autism in Jeddah, Saudi Arabia. The research examined mothers' beliefs about the positive and negative roles that culture, education, and health institutions play in this regard. Five broad themes emerged from the analysis: mothers' concerns; reactions to the child's diagnosis; difficulties obtaining an ASD diagnosis; difficulty accessing resources; and cultural stigma (people's reactions). The researcher explored the themes and challenges of ASD through literature review and field Research (interviews). Findings showed the need to change structural and societal approaches toward ASD to share the burden among all stakeholders alleviating pressure on mothers. Keywords: children with ASD, cultural stigma, mothers’ stigmatization, mothers experience, society positive roles, society negative roles

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沙特背景下母亲应对与自闭症谱系障碍儿童相关的污名的经历

目前尚不清楚患有自闭症谱系障碍(ASD)儿童的母亲在多大程度上受到了侮辱。患有自闭症谱系障碍的儿童需要特别照顾，以提高他们的注意力，掌握必要的运动和行为技能。在大多数社会，特别是中东和非洲，母亲主要是照顾儿童的提供者，而她们的伴侣则集中精力提供经济支持。因此，母亲们经历了许多来自伴侣、家庭成员和社会的挑战和耻辱。这项定性现象学研究调查了沙特阿拉伯吉达15名母亲的经历，她们的孩子因自闭症而受到羞辱。这项研究调查了母亲们对文化、教育和卫生机构在这方面所起的积极和消极作用的看法。分析中出现了五大主题:母亲的担忧;对儿童诊断的反应;难以获得ASD诊断;获取资源困难;文化耻辱(人们的反应)。研究者通过文献综述和实地调查(访谈)来探索自闭症谱系障碍的主题和挑战。研究结果表明，需要改变对自闭症谱系障碍的结构和社会方法，以便在所有利益相关者之间分担负担，减轻母亲的压力。关键词:自闭症儿童，文化污名，母亲污名，母亲体验，社会积极角色，社会消极角色

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来源期刊

Problems of Education in the 21st Century EDUCATION & EDUCATIONAL RESEARCH-

自引率

14.30%

发文量

期刊介绍： Problems of Education in the 21st Century is an international, periodical scientific journal publishing original research across the whole of education. The journal''s Editorial Board and staff are committed to building PEC into the leading scientific journal in its field by publishing articles of outstanding scientific quality that merit the attention and interest of the whole educational community.