Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice)

IF 2.4 3区社会学 Q2 GERONTOLOGY

Dementia-International Journal of Social Research and Practice Pub Date : 2019-10-01 DOI:10.1177/1471301216674559

C. Swarbrick, Open Doors, Educate, Katie Davis, J. Keady

引用次数: 51

Abstract

The involvement of people living with dementia in research has traditionally been located in the realms of ‘subject’ or ‘participant’. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014–2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

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展望变革:共同创造参与和参与研究的模式(创新实践)

传统上，痴呆症患者参与研究一直处于“受试者”或“参与者”的范畴。然而，越来越多的人要求学术竞标团队(尤其是在英国)提高透明度，以展示有实际经历的人是如何参与研究过程的。本文位于曼彻斯特大学(英国)领导的经济和社会研究理事会/国家卫生研究所(ESRC/NIHR)资助的社区和痴呆症研究(2014-2019)内，概述了共同研究人员参与和参与痴呆症(创造)模型的发展，该模型与三个独立的痴呆症患者群体共同制作:Open Doors，苏格兰痴呆症工作组和EDUCATE。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Dementia-International Journal of Social Research and Practice GERONTOLOGY-

CiteScore

5.60

自引率

12.50%

发文量

114

期刊介绍： Dementia acts as a major forum for social research of direct relevance to improving the quality of life and quality of care for people with dementia and their families. For the first time an international research journal is available for academics and practitioners that has as its primary paradigm the lived experience of dementia.