Palliative care: An alien concept in Pakistan

Nadia Pyarali Mulji, Sumaira Sachwani
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引用次数: 5

Abstract

Every living being has to die. Respecting a dying individual’s personal values and preferences is a challenge. We live in a culture where family decisions are given priority over individual’s wish. To address this challenge, a concept of palliative or comfort care is newly introduced in Pakistan. Palliative care is a multidisciplinary specialty that emphases on prevention and relieving suffering as well as supporting the optimal quality of life of patients and their families (Bailey, Harman, Bruera, Arnold, & Savarese,2014). In Pakistan, the concept of palliative care is like a newborn baby who needs a lot of ethical attention in terms of patient’s autonomous decision, family members’ care for the patient and the medical team’s professional obligations. So, in a tug of war between the medical team and the family, the patient should not suffer. I, as a nurse, would like to create a universal familiarity and awareness about palliative care and its associated ethical concerns and suggest nurse’s responsibilities to promote comfort care at home. “There is an appointed time for everything. A time to give birth and a time to die”. Ecclesiastes 3:2
姑息治疗:巴基斯坦的一个陌生概念
每个活着的人都必须死去。尊重垂死个体的个人价值观和偏好是一项挑战。我们生活在一种家庭决策优先于个人意愿的文化中。为了应对这一挑战,巴基斯坦新引入了姑息治疗或舒适护理的概念。姑息治疗是一门多学科专业,侧重于预防和减轻痛苦,并支持患者及其家人的最佳生活质量(Bailey,Harman,Bruera,Arnold,&Savarese,2014)。在巴基斯坦,姑息治疗的概念就像一个新生儿,在患者的自主决策、家庭成员对患者的照顾和医疗团队的职业义务方面需要大量的道德关注。因此,在医疗团队和家人之间的拉锯战中,患者不应该遭受痛苦。I、 作为一名护士,我希望建立一种对姑息治疗及其相关道德问题的普遍熟悉和认识,并建议护士有责任促进家庭舒适护理。“每件事都有一个约定的时间。一个分娩的时间,一个死亡的时间”。传道书3:2
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