Stress, Resilience, and Satisfaction in Families of Children with Disabilities

Q4 Social Sciences
Esther Vela Llauradó, José Manuel Suárez Riveiro
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引用次数: 4

Abstract

Background: A child’s disability can have significant consequences for the family, especially at an emotional level and in day-to-day life. Families must adapt to ever-changing circumstances, frequently leading to stress within the family. Each family member must attempt to cope with these circumstances, drawing on cognitive and behavioral resources to deal with new situations. Objectives: This work aims to study stress, resilience, and satisfaction within the families of children with and without disabilities. It also analyzed these aspects depending on the type of disability (intellectual, physical, autism spectrum disorder, and multiple disabilities). Methods: The sample consisted of 299 families, of whom 178 had a child with a disability and 121 without any disability. The study used the Parenting Stress Index – Short Form (PSI-FS) and the Saavedra-Villalta Resilience Scale (SV-RES). Satisfaction was measured using two items evaluating family satisfaction in general and the perceived satisfaction of the child in particular. Results: The results show that families having a child with a disability reported higher levels of resilience but lower levels of stress and family satisfaction. Moreover, differences were observed depending on the type of disability, with those affected by intellectual disability showing higher levels of stress and lower levels of resilience. Conclusion: The study results show the importance of resilience in dealing with adverse situations that may produce stress. This is an important aspect that must be considered in work and interventions with families of children with disabilities.
残疾儿童家庭的压力、韧性和满意度
背景:儿童的残疾会对家庭产生重大影响,尤其是在情感层面和日常生活中。家庭必须适应不断变化的环境,这往往会给家庭带来压力。每个家庭成员都必须努力应对这些情况,利用认知和行为资源来应对新的情况。目标:这项工作旨在研究残疾儿童和非残疾儿童家庭的压力、复原力和满意度。它还根据残疾类型(智力、身体、自闭症谱系障碍和多重残疾)分析了这些方面。方法:样本包括299个家庭,其中178个有残疾儿童,121个没有残疾。该研究使用了父母压力指数-简表(PSI-FS)和Saavedra-Villalta弹性量表(SV-RES)。满意度使用两个项目来衡量,这两个项目评估了一般的家庭满意度,尤其是儿童的感知满意度。结果:研究结果显示,有残疾孩子的家庭表现出更高的恢复力,但压力和家庭满意度较低。此外,还观察到不同残疾类型的差异,受智力残疾影响的人表现出更高的压力水平和更低的恢复力水平。结论:研究结果表明,在应对可能产生压力的不利情况时,恢复力很重要。这是残疾儿童家庭工作和干预措施中必须考虑的一个重要方面。
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来源期刊
Journal of Intellectual Disability - Diagnosis and Treatment
Journal of Intellectual Disability - Diagnosis and Treatment Social Sciences-Health (social science)
CiteScore
1.00
自引率
0.00%
发文量
29
期刊介绍: The journal aims to describe the research work on Intellectual Disability Diagnosis and Treatment in children and adults. It covers not just the technical aspects of the procedures in prenatal, newborn and postnatal screening, but also the impact which the process of testing and treatment has on individuals, parents, families and public-health in general. The journal seeks to publish, but is a not restricted to, Genetic Intellectual Disability Syndromes, using a range of approaches from medicine, psychiatry, psychology, pharmacy, biology, epidemiology, bioinformatics, biopharmaceutical to association and population studies as well as sociological, ethical, philosophical, legal and quality control issues with the ultimate goal of advancing the knowledge on the diagnosis, prevention, and treatment of the Intellectual Disabilities. The journal publishes original research articles, review articles, case reports and short communications(Letter article).
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