Methods of unproved or uncertain effectiveness used by patients with Atopic Dermatitis

Alicja Mesjasz, Przemysław Siemiątkowski, M. Trzeciak
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Abstract

Introduction and Objective. Atopic dermatitis (AD) is a common, chronic, recurrent dermatosis. It frequently decreases the quality of life and leads to frustration of both patients and their families. Patients with AD seek a variety of therapeutic options, including non-conventional methods. The aim of the study was to determine which practices of unproved or uncertain effectiveness are most frequently used by AD patients in Poland. Materials and methods. 113 survey participants were enrolled (99 parents of children and 14 adults) in Poland diagnosed with AD who responded to an online survey created using Google Forms distributed to online support groups for parents of patients and patients diagnosed with AD. Respondents were given a list of methods of unproved or uncertain treatments for AD, and were asked to choose the methods that they had employed at least once in their lives to manage their or their children’s AD. Results. At least one method described in the study to manage AD had been tried by 76.1% of respondents. Black seed oil was the most popular pure oil, with up to 36.3% of respondents having tried it, making it as popular as cannabinoid-containing ointments and creams. The use of propolis was reported by 24.8% of respondents. Acupuncture had been tried at least once by 23.9% of patients or parents of patients, while 18% attempted bioresonance. Conclusions. This study reveals that AD patients engage in a wide range of practices that contradict current knowledge and recommendations. Dissemination of reliable sources of information and insightful conversations in doctors’ offices about methods seem important.
特应性皮炎患者使用的未证实或不确定有效性的方法
引言和目的。特应性皮炎(AD)是一种常见的慢性复发性皮肤病。它经常降低生活质量,并导致患者及其家属的沮丧。AD患者寻求多种治疗选择,包括非常规方法。该研究的目的是确定波兰AD患者最常使用的未经证实或不确定有效性的做法。材料和方法。113名调查参与者(99名儿童的父母和14名成人)在波兰被诊断为AD,他们回答了一项使用谷歌表格创建的在线调查,这些表格分发给了AD患者父母和诊断为AD的患者的在线支持小组。研究人员给被调查者提供了一份单子,上面列出了未经证实或不确定的治疗阿尔茨海默病的方法,并要求他们选择在他们的生活中至少使用过一次的方法来治疗他们或他们孩子的阿尔茨海默病。结果。76.1%的受访者至少尝试过研究中描述的一种管理AD的方法。黑籽油是最受欢迎的纯油,高达36.3%的受访者尝试过,使其与含大麻素的软膏和面霜一样受欢迎。24.8%的受访者报告使用蜂胶。23.9%的患者或患者父母至少尝试过一次针灸,18%的患者尝试过生物共振。结论。这项研究表明,阿尔茨海默病患者参与了与当前知识和建议相矛盾的广泛实践。传播可靠的信息来源和在医生办公室就治疗方法进行有见地的对话似乎很重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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